Had a few falls the last couple of days. Okay now though, it’s more the shock of it unexpectedly happening and not being able to stop it. Few things went weird with the body/limbs but nothing unexpected.
Propped up in bed now with TV on, sleep a lot more than usual (got told it’s normal🙄)
Soon be back on my feet - wheelchair/trolley/wheelchair😂😂
It's ok just tell your Nuerolgist you would like to get a Vegus Nerve Stimulator, if you don't have a Nuerolgist your Dr can refer you to one. When you see a a Doctor for that they will instruct you on everything, since your in a different location you'll need one near you I'm in California U.S.A.
hope you are able to get about again soon.. slowly does it but good to keep moving.
Have you got smart speakers? not necessarily Alexa.. I have a cheap google mini and it is great for remote use. Ask it to tune in, adjust volume, turn on and off, solve queries.. love it so much, we bought second one for bedroom,
Heck I was replying, then I had one of my involuntary jerking sessions and dropped the mobile😂
Anyway, thanks for the kind reply’s 👍
All I do is sleep lately, weird huh..
I’ve got no feeling at all in my legs now, like two big weights with toes...
Going to the bathroom is fun, it could be an Olympic thingy thing, can’t remember the proper word.
Any way, been told it may or may not (I think that’s what the big word they used meant) be temporary
If it is, it is. If it isn’t, well....how’s that song go by Doris Day, Que Seri, Seri or something like that🙄
Feel so tired all the time, must be all these long runs, I’ll have to cut down on them.
OK that’s it... take care, sleep well, wake refreshed and tomorrow....
Dear Matelot-RN, So sorry you took those falls! I'm glad you weren't seriously hurt! I've fallen many times over the years! As you said, it happens so fast, first you're up and then you're down! Anyway, hope you feel better soon with getting some rest! I'm always tired too, must be an ataxian thing...,ha! Keep smiling...,;o)
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