Ataxia is so unpredictable

[KiwiBob]

I have not been to bad this week. I have had a few ups and downs but got by.

I went into town today and my Ataxia slowly hit me. It took me ages to get back to my car and now I am spending the day on the couch watching tv.

I hate having Ataxia.

[springlove]

I HAVEN'T BEEN ANYWHERE TODAY. JUST SPENT HALF HOUR IN BED AS CAN'T PROPERLY STEER MYSELF AND MY NEW GLASSES AREN'T ANY HELP

[KiwiBob in reply to springlove]

I am up and about but only in the house. Not going anywhere. Has taking all that resting to allow me move about the house.

Very tied, need my bed. Falling asleep while trying to watch the rugby.

[springlove in reply to KiwiBob]

I know the feeling only too well Bob, but we keep trying x

Jeannie

[Cuds]

It gets you like that somedays Bob. Try and turn negatives into positives......legitimate duvet days....now you're talking! 😉

[Ginger12]

Driving - what's that? I gave up about 2 years ago.

Yes ataxia is a swine but we do what we can when we can - without doing too much - as it affects following day!

I find i try & sleep for as long as i can at night (10/11 hours) & that helps during the next day. I try not to sleep during daytime as this disrupts my nightime.

Ataxia sucks. Resting watching TV should help though. Try not to let it get you down.

Keep smiling x

[february]

Dear KiwiBob, I have a system that seems to work for me. If I over-do one day

(go anywhere/ do anything), I totally rest the next. I think everyone feels the way you do about having ataxia, as I know I do...,ha! Just do the best you can! Take care...,;o)