Hello, i am a recovering Alcoholic diagnosed with Cerebellar ataxia in 2003, its only now i meet someone with ataxia who advised me to this site. Can anyone tell me a bit more about my illness?
Cerebellar ataxia: Hello, i am a recovering... - Ataxia UK
Thank you for your question. There are many different causes of ataxia with excessive alcohol use unfortunately being reasonably common. The link below is to a leaflet written by Ataxia UK in conjunction with Dr Paola Giunti who is a Consultant Neurologist at the Specialist Ataxia Centre in London about cerebellar ataxia related to alcohol. I hope you find this helpful. Please do not hesitate to ask any more questions.
HI.I WAS DIAGNOSED WITH CA IN 05 SO FOR ALMOST 1 YR I TOOK TO DRINKING A LOT THEN ONE DAY I REALIZED I WAS FEELING SORRY FOR MYSELF SO I GAVE MY SELF A GOOD TALKING TO AND STOPPED THEN I GOT MOLLY A JACK RUSSEL AND SHE HAS MADE SUCH A DIFFERENCE TO MY LIFE,SHE BECAME MY FOCUS IN LIFE.IM STILL WOBBLY SO JUST HANG IN THEIR AND TRY AND ADJUST TO CA AND YOU WILL GET THEIR GOOD LUCK
I hope you are feeling a little better having more information about your illness. ataxia.org.uk is a good way to keep up-to-date on what is happening in the world of Ataxians. Also check to see if there is a support group or branch near you: ataxia.org.uk/support_direc...
The list view is a full list of all branches and support groups in the UK and who knows you might find someone with a similar condition to yourself to chat with.
I have got Cerebellar Ataxia now diagnosed in 2008/9. I am also a recovering alcoholic and went to AA for 10 years.I gave up over 10 years ago and didn't drink heavily or for a long time.But I don't know what damage I did.It might be a red herring.I don't have any memory problems and don't have any neuropathies.However I have intention tremors and walking difficulties now after about 6/7 years.I think CA affects us all differently.I will probably never know what caused it but false guilt may play havoc with your brain as much as alcohol.