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Ataxia UK
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Cerebellar ataxia

Hello, i am a recovering Alcoholic diagnosed with Cerebellar ataxia in 2003, its only now i meet someone with ataxia who advised me to this site. Can anyone tell me a bit more about my illness?

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Hi mediumflex

Thank you for your question. There are many different causes of ataxia with excessive alcohol use unfortunately being reasonably common. The link below is to a leaflet written by Ataxia UK in conjunction with Dr Paola Giunti who is a Consultant Neurologist at the Specialist Ataxia Centre in London about cerebellar ataxia related to alcohol. I hope you find this helpful. Please do not hesitate to ask any more questions.

ataxia.org.uk/data/files/in...

Best Wishes

Harriet

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HI.I WAS DIAGNOSED WITH CA IN 05 SO FOR ALMOST 1 YR I TOOK TO DRINKING A LOT THEN ONE DAY I REALIZED I WAS FEELING SORRY FOR MYSELF SO I GAVE MY SELF A GOOD TALKING TO AND STOPPED THEN I GOT MOLLY A JACK RUSSEL AND SHE HAS MADE SUCH A DIFFERENCE TO MY LIFE,SHE BECAME MY FOCUS IN LIFE.IM STILL WOBBLY SO JUST HANG IN THEIR AND TRY AND ADJUST TO CA AND YOU WILL GET THEIR GOOD LUCK

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Hi mediumflex

I hope you are feeling a little better having more information about your illness. ataxia.org.uk is a good way to keep up-to-date on what is happening in the world of Ataxians. Also check to see if there is a support group or branch near you: ataxia.org.uk/support_direc...

The list view is a full list of all branches and support groups in the UK and who knows you might find someone with a similar condition to yourself to chat with.

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I have got Cerebellar Ataxia now diagnosed in 2008/9. I am also a recovering alcoholic and went to AA for 10 years.I gave up over 10 years ago and didn't drink heavily or for a long time.But I don't know what damage I did.It might be a red herring.I don't have any memory problems and don't have any neuropathies.However I have intention tremors and walking difficulties now after about 6/7 years.I think CA affects us all differently.I will probably never know what caused it but false guilt may play havoc with your brain as much as alcohol.

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Hi!

This site, and the US ataxia sites, give a lot of support when you need it. No question

is too trivial to ask, and there's bound to be somebody who's encountered something

similar. Even if you just want to rant a bit, just log on.

best regards

Beryl

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My husband cerebral atrophy which causes his ataxia. He does not drink nor has he ever drank . They dont know what caused it. He is 53 and has to apply for disability due to mutiple falls and being a liability to his employer

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Hello Harry,

you wrote:

There are many different causes of ataxia with excessive alcohol use unfortunately being reasonably common.

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that´s really a problem for people - like self- who don´t have a DROP:

Regards

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Thank you all of you who replied to my post.:-)

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