I’m new here.

Hi,I’m new here and have symptoms of ataxia possibly due to gluten as have been coeliac for about ten years and have a gluten free diet.Having problems with balance,dizziness,clumsiness,difficulty finding the right words,problems swallowing and choking at times.Seeing my GP next week and wondering what tests to ask for?I know there is a test for tTG6 which is unavailable on the NHS as yet(I would pay if it was available and affordable privately).I am lower end of “normal “ for vit B12.Have fybromyalgia and Sjögren’s syndrome.IgM is 0.25g/L(low),IgG is 14.6g/L(within range) and IgA is5.93(high).These are results from 2 years ago.I see consultant for coeliac in September.Any advice appreciated.

[majajefferies]

Hi,

Have you thought of a referral to an ataxia specialist centre (these are listed on Ataxia UK)? They would then be able to refer you to all the specialists under their umbrella, like speech & language, physio, ot, gastric, etc.

I would also probably ask for an assessment with the swallow clinic (dysphagia) if you find you cough when swallowing.

Good luck!

Maja

[Hidden in reply to majajefferies]

Thank you Maja, I'll look into that.

[TedTom]

Hi, am assuming you are in uk? If so I d say go to see Prof Marius Hadjivassiliou at the Ataxia clinic atthe Royal Hallamshire in Sheffield. His particular research into Ataxia is gluten and is also a lovely man x

[Hidden in reply to TedTom]

Thanks TedTom.I’m in UK(Scotland)so I'll find out if it’s possible to see the Prof.in Sheffield.