Nystagmus: The worsening of my nystagmus has had... - Ataxia UK

Ataxia UK

4,032 members4,570 posts

Nystagmus

margaretm profile image
3 Replies

The worsening of my nystagmus has had an adverse effect on my balance. An eye examination suggested that prisms in glasses would not help and I had more or less resigned myself to accepting that nothing could be done. Then I read about a new, experimental procedure at Moorfield Eye Hospital where magnetic plates were inserted below the lower lid of the eye to regulate 'dancing eyes'. The results were very pleasing. I wondered if anyone had more information, or has visited a neuroopthalmologist?

Written by
margaretm profile image
margaretm
To view profiles and participate in discussions please or .
3 Replies
wobblybee profile image
wobblybee

🙂 I just logged onto Moorfields because I hadn't heard of this procedure Margaret. They're looking for volunteers to take part in a larger study🙂xB

margaretm profile image
margaretm in reply to wobblybee

Thanks so much, Beryl x

wobblybee profile image
wobblybee

🙂 Anyone interested in taking part in clinical trials should see ukctg.nihr.ac.uk 🙂xB

You may also like...

Nystagmus worse after vestibular physio?

My nystagmus is worse after vestibular physio. I can’t find anything about this online. Has anyone...

Did the PIP assessment yesterday

of the question asked were out of the ordinary, but the only real criticism I had was at the end of...

Dealing with Episodic Ataxia.

I have had episodic Ataxia type 2, since I was about 11 and I am 35 now. It is one of the more...

Occasional tremors - experience and \"treatment\" would be highly appreciated

experienced tremors in my whole body, they were annoying and made me even more uncomfortable going...

Blood tests negative - now what?

genetic blood tests had finally come back after a three month wait, and that the results were...