IS THERE ANYTHINIG IN THE USA LIKE THIS ASSOCIATION?

[onlymebarb]

IS THERE ANYTHING IN THE USA LIKE THIS ASSOCIATION?

[Don21]

Yes try livingwithataxia.org . It is a very helpful site. Good luck

Best wishes.Anna

[wobblybee]

Hi 😊

Also, ataxia.org ( The National Ataxia Foundation) has loads of info and links.

This is based in the USA. Info includes links to local support groups, Neurologists

and Ataxia Centres. 😊xB

[neta]

But Living with Ataxia seems to have vanished. And NAF does not contact inividuals.

[nigelrheath]

Hi Barb

Sounds like you might have to do more searching or start your own group. Meanwhile you're welcome to hang out with us.

There's a lot of research going on in the states so that may be worth investigating.

I've started a site with some ideas for dealing with sca, have a look at

Ataxiafightback.wordpress.com

Nigel