IS THERE ANYTHINIG IN THE USA LIKE THIS ASSOCIAT... - Ataxia UK

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IS THERE ANYTHINIG IN THE USA LIKE THIS ASSOCIATION?

onlymebarb profile image
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IS THERE ANYTHING IN THE USA LIKE THIS ASSOCIATION?

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onlymebarb profile image
onlymebarb
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Don21 profile image
Don21

Yes try livingwithataxia.org . It is a very helpful site. Good luck

Best wishes.Anna

wobblybee profile image
wobblybee

Hi 😊

Also, ataxia.org ( The National Ataxia Foundation) has loads of info and links.

This is based in the USA. Info includes links to local support groups, Neurologists

and Ataxia Centres. 😊xB

neta profile image
neta

But Living with Ataxia seems to have vanished. And NAF does not contact inividuals.

Hi Barb

Sounds like you might have to do more searching or start your own group. Meanwhile you're welcome to hang out with us.

There's a lot of research going on in the states so that may be worth investigating.

I've started a site with some ideas for dealing with sca, have a look at

Ataxiafightback.wordpress.com

Nigel

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