Violent tremors.

[silkwood]

Which medication do you find helpful for tremors?

Last year I developed an intention/action tremor in my hands.Over the year it has got much worse and has spread to the legs.I have been backwards and forwards to my GP and he is baffled as well.

I have tried Propanolol in mild and heavy dose;that has not had any impact.I aalso have tried a low dose of Madopar;no effect.Are there any other suggestions for my GP to try?

[HarryB Administrator]

Hi silkwood

Thanks for your question.

Intention tremors can be difficult to treat. There are different causes for developing intention tremors. Cerebellar intention tremors are quite common and can be quite difficult to treat. However there are a number of medications/interventions that can be used. My advice would be to speak to your neurologist about this (and if you don't see one your GP should refer you) to both decipher the cause and also to recommend and discuss potential treatments.

Best wishes

Harriet

[silkwood in reply to HarryB]

Thanks for your answer Harrry.It is upsetting me greatly.I have written to the Neurologisst at Oxford but no answer. That was before Xmas.

I am wondering iff it is a combination of things and another MRI would prove deterioration.

I have to go back to the Dr. Medications tried has not wworked so far.I wondered if it would worth considering alternative interventions.Have you got any suggestions?

What have others done about their treemors if indeed they aare caused by CA.?

[HarryB Administrator in reply to silkwood]

Hi silkwood

I am not a specialist at all in this area and can really only go by the medical guidelines Ataxia UK have produced. There is a long list of medications that could be tried, I see you have only tried two. Referral to a physio can be helpful to help you with the tremors and a procedure called deep brain stimulation can be used. I must stress though, like with all medications/procedures, what is effective and suitable for one person might not be so for the next.

I am afraid I cannot talk from personal experience really. I do have a head tremor for which botox injections were used to try and help. They did help but I had side effects on a very small dose. Hence I didn't have them again. Fortunately the tremor is not too bad. I do not have an intention tremor.

I am sorry you have had no response from Oxford. It might be worth telephoning or emailing them. If your speech is slurred and you don't like talking on the phone, maybe someone else could do this for you.

Best wishes

Harriet

[february]

Dear Silkwood, I'm so sorry you are suffering with such violent tremors. I have intention tremors in my hands/fingers, although they are mild compared to yours. I don't take any meds at this time, so I'm sorry but I don't have any suggestions for you. I agree with what HarryB said, as a neurologist could possibly help you. Have your GP refer you to one. I hope you find help for your tremors soon! My best to you..., ;o)