I have spino cerabellar ataxia, the soles of my ... - Ataxia UK
I have spino cerabellar ataxia, the soles of my feet are numb and has an effect on my balance when trying to walk.
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Hi helsie
Thanks for your question.
As you are probably aware the nerves in the hands and the feet can be damaged in a person with spinocerebellar ataxia. This is called peripheral neuropathy. I think any problem with the feet can affect our balance (I have a cerebellar ataxia as well) I have some peripheral neuropathy in my feet but I have noticed ill fitting shoes or even my toenails being too long can have a negative effect on my balance. I would advise speaking to your neurologist about this and also asking to be referred to a chiropodist or podiatrist who specialise in foot problems to see if they can make any further suggestions to help you.
Best Wishes
Harriet
Thank you for your kind help, I am very careful what footwear I wear. The correct fitting footwear are essential to me, I do walk with sticks. My physio gave a pair of crutches but I find them difficult to use. I also have numbness appearing in my hands feeling as though I am wearing thick gloves. It is reassuring to have this help.
Hi Helsie my daughter has SCA Ataxia too and also has numb feet. She can walk a little but uses a stick to feel where the ground is because her feet can't and splints on her legs to keep her feet in a good position. Maybe a stick would help you?
Best wishes
April
Thank you for your kind reply.... I do walk with sticks to assist my balance. It is interesting to hear about your daughters condition, I hope all goes well for her
Ah HarryB, a very complicated subject. But, from what I've read, vit E can also be involved with peripheral neuropathy. I've only read it, so welcome further info.
Dear Helsie, Although I have ataxia, I don't have numbness in my feet. I cannot add to what other's have suggested. Just wanted to tell you I'm thinking of you, and hope some of the previous suggestions help you! ;o)