Anyone have any information or helpful opinion regarding stem cell treatment? Mum has sca17

[vix86]

[silkwood]

Interested but sceptical.Won't believe neewspapers or foreign claims.

[vix86 in reply to silkwood]

Thank you for response

[february]

My neurologist (I've had two thus far) doesn't endorse stem cell treatments. They claim it's early, early days in research and extremely expensive. Just their opinions! I wish you mom the best, if she decides to try it! ;o)

[vix86 in reply to february]

Thankyou february, mum doesn't know about it yet I need to gather as much info as poss. Its is very political and apparently america are beginning to come round to the idea and research but its difficult to know what to believe and yes its very expensive! Will co tibue to research and keep all posted x

[HarryB Administrator]

Hi vix86

Thank you for your question. The first link below gives general information into research with stem cells. The second is Ataxia UK's position statement on stem cell therapy. My own personal view completely mirrors this (I have a cerebellar ataxia of unknown cause).

ataxia.org.uk/pages/stem-ce...

ataxia.org.uk/data/files/re...

Best Wishes

Harriet

[vix86]

Thank you Harriet, I will take a look at them this eve, appreciate your time and reply x

[vix86]

Harriet, I've just managed to read through both links and found both really helpful! I have high hopes x

[HarryB Administrator]

You are very welcome. I am delighted you found the links helpful!

Harriet

[madbpm]

I have been to China & CostaRica for Stem Cell treatment. It didn't work for me but it did work for some people