Probably several people with ataxia live in the ... - Ataxia UK

Ataxia UK

4,075 members4,642 posts

Probably several people with ataxia live in the flood affected areas of the UK. How did they manage?

klazien profile image
2 Replies

I would like to know whether moving away from the water or mudslides panicked them more because they were so much less nimble?

Does anybody know how the freezing temperatures affected Ataxians in the US? How can a slow going Ataxian move fast in and out of the cold to avoid frostbite?

I often worry about how I would manage in case of a disaster when I can’t run.

Maybe someone has already talked about this but I can’t find it.

Written by
klazien profile image
klazien
To view profiles and participate in discussions please or .
2 Replies
wobblybee profile image
wobblybee

Hi Klazian!

It must be/have been a nightmare for some of us. Like you I would

be unable to run, and if it were slippery underfoot my legs would

probably go rigid. I can only hope anyone affected by floods etc

has been able to get support from their nearest Ataxia Support

Group.

As far as the US is concerned, I know for a fact at least one of our

members is 'enjoying' coping with all that snow! :-) xB

february profile image
february

Dear Klazian, I live in the States and the recent frigid temps and snow (8-12 inches where I live) really didn't bother me. I fortunately didn't have to leave home during the worst of it (I'm retired). I viewed the snow falling from the windows...,beautiful! When I do go out, I use my cane and negotiate very carefully each step I take, as I (as well as other ataxians) can fall easily, especially on the snow/ice...,scary! I also have these "grids" I slip on my boots that really help! The cold temps make my body even more rigid/stiffer than it already is, so that part I don't like. I must get out of my house sometimes, as eventually cabin fever sets in...,ha! I heard about the flooding in the UK, which I wouldn't appreciate. I hope all fared OK. Honestly, I never thought about what I'd do in an emergency, as there's no way I can run. Guess I'd have to take my chances and move at my stiff snails pace to get away! ;o)

Not what you're looking for?

You may also like...

membership of Ataxia Uk. I live in France and would like to become a member of Ataxia UK.

However when I fill in the details I have no UK postcode. Can I become a member?

Ataxia Clinic

Hi All, I have an appointment later on in the year at the London Ataxia Clinic and was wondering...

Broken but not done!

I have not posted for a while now as I was pretty down and I think we can scream and shout, but all...

Hello all! I am new to this site but I wondered if I could have your help, its regarding Occupational Therapy for Ataxia?

Hello, I am a 2nd year student of Occupational Therapy at University. My older brother has...

Sleep

Hi everyone hope you’re all getting by these unknown times. Another question for you, I don’t think...