Anyone know anything about cavernoma? I recently had sleep study and mri scan and it was found. I think i need surgery again.

[cclive35]

Its taken me 20years to learn how to deal with the last lot of surgery

[wobblybee]

Hi cclive35!

I'd never heard of this, I googled it, did you know about the website

Cavernoma Alliance UK? xB

[february]

Dear Cclive 35, What is carvernoma and what type of surgery did you have? I had a sleep study and MRI when diagnosed with my ataxia (11 years ago) and I have sleep apnea (use a C-Pap machine when I sleep at night). My neuro said many people with ataxia have sleep apnea. Does carvernoma have anything to do with that? :o)

[cclive35 in reply to february]

I had a haematoa op 20 yrs ago and now after sleep clinic they found out i have some sort of epilepsy but need op to remove cavernoma

[february in reply to cclive35]

Thanks for the info. and best wishes, Cclive35!!! ;o)