I don’t think other people can understand how unsettling it is to not have a definitive diagnosis and plan of care. When you break your ankle, you have an X-ray, get a cast, use crutches, heal in a set number of weeks and everyone knows and it is easy to explain. As I’ve been bounced around to doctors and am now searching for a new asthma doctor, I just want someone to say definitively that I do or do not have asthma. My previous asthma/allergy doctor said I have moderate persistent asthma and then a couple months later was convinced I had VCD and then wrote that she wasn’t sure if I had asthma at all and might need to do a methacoline challenge. Meanwhile, the same day the ENT said that I do not have VCD and she would not do a methacoline challenge because My asthma symptoms responded positively to both prednisone and albuterol.
This has been a crazy 6 months since this “adult onset asthma” has started. I’m tired, frustrated, still coughing off and on, worried about my next flare and I think my family is tired of me being tired. Being a mother to two teenagers, wife, and teacher is hard enough without this new illness and many appointments. I’m tired of it all and rather depressed at times.