Recurrent croup and asthma

My sons aged 5 and 7 have suffered from severe recurrent croup since being babies with regular hospital admissions and dexamethasone steroid treatment. They haven't had a proper diagnosis of asthma however they are both on clenil and ventolin which I have no idea if the clenil is actually working because I find it hard to distinguish between an asthma attack and a croup attack now. Sometimes they don't have the barking croup cough and the ventolin settles the attack when struggling to breath but upon seeing the gp they says its the croup which just confuses me.

The croup/asthma is always brought on by a cold or virus and my oldest son has a constant cough which worsens if he is active or laughing. The cough has been so bad at times that his teacher has rang me to pick him up because hes disrupting the class.

I have no support from our gp or asthma nurse if I ask questions they say I need to ask the opposite person so I go back and forth between the two with no answers or management of it.

Does anyone elses child get croup alot? I feel mentally exhausted and have started to become irrational. I constantly worry and think they will die and lie awake at night wondering which one will wake up struggling to breathe and then.theres the mad dash to hospital. Even when.they are not ill I am anticipating them being ill so I never get any rest.

Its resulted in me having severe depression, amxiety and.panic attacks and I have given up my job as an accountant due to this and having so much time off.

I just don't know what to do to get this under control there doesn't seem to be a time when they are completely well.

14 Replies

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  • Hi

    Do you know I have dealt with this for years with my son. Although he is asthmatic medical staff would often say its viral, he has croup. Then one day I arrived on the children's ward after phoning and saying we were on our way (he has open access) only to have the same thing said to me, its croup. We were sent home and told to return six hours later as the medication he was given needed to be given six hourly and had to be administered on the ward. I told the staff that his asthma can often sound like this but it then changes into more of a typical asthma cough and I was sure it was asthma.

    They were so convinced it was croup I accepted it (after all he has had croup in the last an the cough did sound croupy). So we went home, we were only home about 30mins when my son suddenly went into a full blown asthma and actually asked me to get him to hospital quickly, terrified we jumped in the car and drive back. The hospital staff were shocked and how quickly he had gone down hill and agreed it was an asthma attack he was having. The croup cough had gone!!! A few weeks later we saw a consultant from a another hospital as I wasn't happy with our own consultant care. I explained to her about him often sounding like he has croup and the fact that I was often fobbed off because of it. She said that he had a floppy airway and the reason his cough sounds like a bark is when he is really struggling and his airway is finding it hard to get any air out and you get this barking noise. I was so relived that finally someone understood what I was talking about and at least now I am able to tell other people why he is barking.

    I hope you get some answers for your son, it would definitely be worth mentioning this to someone because potential it could be so dangerous!

  • my son zak has been having croup since a baby along with chest infections he was diagnoised with asthma afther a life treating attack last year he is 4 now and in reception i would keep on for the longest time the docter would say we cant say for sure that its asthma but once he had a mayor attack they had no choice

  • Hi all,

    I am very interested to read your posts as we have been going through this since my 5 year old was 6 months!

    I hope you dont mind me saying that it is a relief/comforting that other people are having the same problems as we are as I was starting to feel like a fake and that it was in my imagination!

    Our son had his first croup attack at 6months. The GP (a very poor one) said to me 'it's croup, it lasts and hour' and sent me off. 2 days later he still had croup. Since then he has current every year normally in the colder months but as you know in this country this can last a long time. Every year we have been told that he will grow out of it. These episodes have become more and more difficult to manage and get better.

    2 Years ago september he started with a bad cough and still had it 3 months later. At this point they said it was Whooping cough and gave him and inhaler. 2 weeks later we had to take him to A&E as he had a croup attack. They were great and gave him the liquid steroids which was like a wonder drug on that occasion and he was a different child 20mins later. they also said to come straight in in future sio he can have this medicine. As time has gone on it is less and less effective and he has to have the tablet steroids as well.

    The inhalers didnt seem to make any difference with him, he had a croup attack anyway. A year ago we were referred to Paed clinic and this march he had an MLB to check for a narrowing of airways, this was ok. We back to Paed clinic who say he has a sensitive immune system, an ear infection lasts 4 weeks and 3 lots of antibiotics, and were also referred to asthma nurse.

    She has been fab and asked whether we had videoed him having his attack. I admitted that i had thought about it every time!! She asked for peak flows for 2 weeks and literally 2 days later he had another croup attack. I knew it was going to happen and had my phone ready to video him. His peak flow dropped to 60 over these days. He is on Clenil again now and we are due back on monday to see asthmas nurse. He had another croup attack sunday and is still poorly with it.

    How is eveyone getting on with it? Have you found any good ways of managing? Ours tend to happen when the weather is cold/damp, in the early morning, he coughs until he is sick and he has to have so much time off of school.

    Hope to hear from you

  • Hi! We're in the same boat back and forth to hospital with croup attacks, given nebuliser, dissolvable steroids, clenil, ventolin only for it to come back we're on night 7 now scared to go to sleep ?

  • My daughter is 9 and she gets this a lot, I am sick with worry it never seems to completely go away we are under specialist treatment but nothing seems to be working. She was fine up until a few years back a healthy normal life style, I am at the end of my teather. She has hay fever also that is hit and miss, I have purchased a air purifier/humidifier this makes no difference. Her breathing can be so bad that she can not even laugh at times its preventing her from doing activities with her friends and it just breaks my heart to watch her go threw it all. Her peak flow can be as low as 70 her tonsils are always inflamed and the go usually just send us away with steroids or nothing at all.

    I'm wondering if anyone has any idea on what I can do to help her and prevent her from catching these virus

  • I am in exactly the same boat, my son has had croup 8 time this year, currently going through the 9th and are 5 days into it.

    I am so worried and anxious at the moment as I am everytime he gets it.

    His gp is useless, Drs at hospital are useless too.

    Asthma nurse for first time next week by I am so scared he's not gonna make it they he is right now, sounds daft but his attacks are so bad I'm just frightened.

    Anyone got any advice?

  • Hi :) My Son is 2 and Since November last year we have been experiencing the same problems with no answers from the health care professionals. I noticed this thread and just wondered if any of you have any updates or success with doctors and managing this condition? Thanks in advance :)

  • Hi have just found this thread after speaking to my GP today. We have 2 children a girl 5 and a boy 2 who keep getting recurrent croup. Myself and my husband are both in the ambulance service so are used to seeing children with both croup and asthma. both my children seem to get 2-3 episodes of croup a year when they get a cough and cold. They have very typical croup type symptoms, slight temp, the barking cough and a stridor noise when breathing and their symptoms are always better during the day. We always assumed this was croup but my GP phoned today to say that she had spoken to a paediatrician as she thought the kids shouldn't keep getting croup as frequently and it may be asthma and the paediatrician agreed. we've now got to keep a diary of symptoms to see any link. Is there any update on anyone else and how you have got on? Really hoping the kids don't have asthma but obviously don't want it going undiagnosed. thank you

  • I read somewhere that recurrent croup (known as spasmodic croup if I remember correctly) can be linked to allergies. It will be a good thing perhaps to get your child tested for any allergies and see if there may be a link there? Good luck and I hope you and your little one get to the root of it.

  • Hi, my daughter has been going through the same thing all her life and she is 81/2 now we are always told its just a virus Id like to chat with you about your kids symptoms if possible

  • Hi Nicki yes feel free to chat about your little girls synptoms, we have a Drs appt in a couple of weeks to discuss the diary so I may have more info then.

  • My daughter is 5 with chronic croup and since september she's been in the emergency room every month and December and February twice ,they give her the steroid treatments every time and a couple times at her doctors office ,they decided to remove her tonsils and adenoids,on April 10th,she had the gastrointestinal doctor do a biopsy on her esophagus,stomach and small intestine to see if she has acid reflex and allergies ,all came back negative.they did find out she has narrowing of her right side airway into her lung,now she has to get a m.r.i and has to see a lung doctor,she's missed so much school,this past Monday was her second episode since the surgery,her e.n.t gave me predniso for home so we didn't have to run to the e.r every time she got an episode.tuesday night into Wednesday morning I had to give her a dose of predniso ,and sit on our porch for the cold night air to help out ,didn't work as good as the medicine they give her at the e.r ,but she's had so much of that medicine I'm afraid it's either going to hurt her or not work because she has had a lot of it.she had a doctors appointment this morning they took more blood,and for me to keep her home from school tomorrow.so frustrating not knowing what's going on with her.

  • Hi all - interesting thread.

    My son is now 4 and a half. He had his first bout of croup when he was about 1. Since then he has had 6 trips to the emergency department and 3 admissions to the children's ward overnight. We have also treated him at home with a steamer (with an inhalant) and plenty of fluid so I suspect in total he has had about 15+ episodes of croup.

    I must say the staff at the hospitals have been superb and he is always treated immediately with the steroid "Dexamethasone" or Dex as the hospital calls it and has, for the last 3 trips to the emergency department had the adrenaline "Epinephrine" through a nebuliser. It is a shame that for recurrent croup parents are not given Dex to administer at home.

    We have now been referred to an ENT specialist for further investigations as the hospital advised these episodes should not happen as much. I will post an update once we have seen the specialist.

  • Hi all

    Wish I had joined here sooner! My son is nearly 4 and he's had croup 18 times & currently on his second dose of Dex for his 18th attack!! I could write a book! We have exhausted every avenue via NHS! Athsma nurse gave us clenil & salbutamol inhalers but GP thinks it's a case of growing out of it however I do have dex on repeat prescription thank god! I pushed for allergy testing too as he does suffer with viral croup but I do believe a lot of his attacks have been allergy related also! GP wouldn't refer me for allergy testing so I went private turns out allergic to most things I suspected... dog,cat,rabbit hair, trees, grass cuttings, pollen and randomly cod the allergy specialist recommended we stop using the inhalers as told us they're probably doing more harm than good if he's even taking them properly as said if he isn't breathing it in properly it's likely to be doing more damage to vocal chords! We are under an ENT specialist who performed an endoscopy a few months back and during procedure discovered he had floppy larynx so removed some of that to open airway so we really thought he had been cured but literally two weeks later another croup attack he's now recommended he has 5ml of a second generation antihistamine daily which after three weeks sent him crazy horrific tantrums foaming at the mouth so took him off that (cetrizine) and he's now trialling another one then after three months of him being on them if still having attacks (which he is) he is then to try a reflux med as they found acid reflux on vocal chords during endoscopy so he then needs to try that medication for three months and if we are still experiencing attacks he will then be referred to respitory specialist for further tests from them! I am also exhausted & sick of suffering the anxiety and anticipation of the attacks coming on and 3am dashes into the night air with my child barking & struggling to breathe!!! Then the aftermath of the irritability off the steroids it's an awful vicious circle!

    Hope this info helps some of you anyway!

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