ok folks, so once again i havent been online in donkeys ages...michael has been keeping me very busy. he is, after a relitavely stable last year he has been in 7 times since january. NIGHTMARE!!!
anywayz, hes just started doing peak flows, getting 100-150 every day which we have taken to be his ""best"" just now though hes barely getting above 50 despite 4 hourly nebs and a higher dose of pred. he is coughing (as usual) but is chirpy enough which means that in not toooo concerned, just got out of HDU 10 days ago after hydrocortasone, iv salbutamol etc but i really dont know how much longer we can deal with all this, theres hardly any more meds to try, xolair has even been mentioned a couple of times as a last ditch attempt. im just getting really frustrated with it all, and i wish i could take it all away for him.
im also worried that he is getting ""used"" to being wheezy, he hardly ever asks 4 a neb, despite being baltanly wheezy, he says he feels fine and that hes not wheezing etc.
anyways, i dont want anyone to give me a cure...but just a couple of random shoulers would be nice to cry onto, cheers
kirsten (i wont moan TOO much i promise)