This is the first time I've actually posted a message here, although I do tend to come on every few days to see what others are struggling with.
I'm 24 and currently a graduate student doing a lab based PhD which I love. I was diagnosed with asthma at about 16 and despite being on quite a lot of medication from the off it didn't cause me too many problems at first. Over the past four or five years though it has been rapidly deteriorating and trips to hospital are now frustratingly common. I used to manage to leave A+E after a few hours of treatment but each time I seem to get more resistant to the drugs and now always end up being admitted for several days. I was also medically evacuated out of China 18 months ago after developing a severe chest infection whilst backpacking out there.
In between attacks I am fine and extremely active but they seem to come from nowhere and are generally linked to chest infections. Its starting to have quite a big impact on all aspects of my life as I also suffer from bad side effects when I'm on pred (way too often) - the day after my last admission I fell down a flight of stairs as it makes me loose my balance if the dose is to high and so I've had my right wrist in plaster for 7 weeks!
I'm getting quite tired of the constant courses of antibiotics and pred whilst trying to carry on with life as normal. I feel like I'm getting behind in my PhD and my relationship with my boyfriend has been really starting to suffer. I just wondered if there is anyone who could give me some advice on how to pull through this so that I can manage to juggle it alongside a successful career and relationship, not to mention being able to travel freely with friends without having to lug round so much emergency medication and pay a fortune in travel insurance premiums.
Sorry for such a long moan. I know that things could be a lot worse but every year I deteriorate and despite my drs, nurses and cons being very sympathetic they just seem to bounce me back between themselves without actually changing anything. I always put a brave face on for friends, family and at work which I think now has made it worse as it means no-one really understands what I'm going through.
Thanks for listening,