neb's ?

hi my son's (who is 2 1/2asthma) is up and down (more down than up at mo) he is on montelukast 4mg once daily,salbutamol 6puff every 3-4 hours when needed,flixotide 50 3 puffs twice a day.prednisone 25mg daily for 3-5 days when bad.we are see the paediatrician every 8 weeks, i was thinking that i may ask if we could try giving t ned's at home as i do't think he is taking the inhaler in all the time.what do you think?i'm at the end of my tail trying to get control at the mo.as i sit here now i can hear him coughing.

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  • You say his 2 and a half, wow poor little guy going through so many heavy drugs. I would check with his doctor on that, nebs arnt that pretty, their pretty heavy, and for his age i would check to make sure.

  • Docs are very very reluctant to give nebs at home now as people push boundaries before seeking medical help, its too easy to get into the just one more neb senario. My son has had home neb since he was 18mths (now 11) but he has a strict protocol from Rbh as to how many nebs we can d b4 he needs hospital. The other side of it is alot of hospitals are now giving 10 puffs ventolin via spacer instead of nebs as this can be just as effective for some people. Obviously this is down to the individual as some people depend on nebs, my son says inhaler ok for day to day not badly struggling moments but when struggling it has to be a neb.

    Hope your little one settles soon

    J x

  • anyone got any more advise on nebs?

  • Yes; don't expect to get home nebs just by asking!

    As the previous posters have correctly said, they are very much a ""last resort"" and many doctors feel that by providing home nebs you will wait too long using them before seeking medical advice.

    If they are warranted, they will be provided.

  • My son is 5 now and I have just recently bought one as his asthma was moving on to a different stage, we were first told to double up his brown inhaler, then we were to give blue inhaler at first sign of a cold then double up, then we were at surgery being nebulised then hospital nebulised with pred. His meds have been changed to 100 of beclametasone am/pm salbutamol as required. GP very supportive of me having nebuliser, which I have to use when he has an episode in the night and pred then to call my GP in the morning( obviously if this doesn't work I have to call 999). My son was same age when diagnosed his episodes at present begin with a cold. You have to know the boundries and as long as you have had a disussion with GP/consultant about how you will use it and to know that if it fails to have effect then you must seek help immediatley. I'm not such a beleiver in the multi dosing via spacer - from my own experience (I myself am asthmatic since I was 9 months old) then I honestly believe that you get to a point where you just can't breath it in anymore for it to be effective. All medicine at some point will become less effective it doesn't matter how it is administered. I read the comments about folk leaving treatment to the last minute and I look at it from the other point of view, at least I have treatment there at my hands ready to use (and not willy nilly like some might say also).

    I hope this helps

  • Can u nebulise pred?? havent heard of that b4 or did i misread the post?

    In regards nebulising willy nilly, I dont think anyone was suggesting people do that but I do know the specialists at the leading chest hosp my son goes to are anti home nebs in most cases. I thought if a doc thought a home neb was needed they provide one rather than patients having to meet cost?

  • call06 wrote:

    ""I read the comments about folk leaving treatment to the last minute and I look at it from the other point of view, at least I have treatment there at my hands ready to use (and not willy nilly like some might say also).""

    The point is not about having the treatment to hand, but that many doctors feel that if you have home nebs you may put off going into hospital when you *need* to because you have the ""safety net"" of using nebs at home.

    Conversely there are many folk on here who use home nebs as part of their daily treatment regimes (but as preventers, not relievers) - and then there are others who require nebs as relievers and thus have theirs at home. For these people, their doctors have decided that the stage at which they need to neb is BEFORE the stage at which they should seek hospital treatment. If your doctor feels that nebs should come AFTER seeking hospital treatment, then home nebs won't be prescribed.

    Hope this clears things up slightly!

  • I use a home neb routinely now for me but I remember the fight I had to get one!

    I was going to hospital all the time and having so many admissions just requiring nebulisers and so eventually the head GP at my practice leant me one of theirs to see if it helped keep me out of hossie and at the same time referred me for an urgent appointment with my chest team at the hossie to see if they agreed to keep me on them at home which they did!

    I used the GPs loan neb for getting on 12yrs untill I bought my own smaller quieter neb!

    But u only allowed to buy them if you have nebuliser solutions prescribed.

    You need to speak to your sons Dr's and explain your concerns to them - they may agree and they may not as every situation is different!

    Like others ahve said those of us with nebs have strict guidelines to stick too - people dont take nebs willy nilly - relying on nebs to breathe certainly makes you respect their use!

    I cant use aerosol inhalers full stop which also helped me in getting a neb but I had the backing of my chest consultant/nurses etc etc!

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