In a sudden turn around my dermatologist has said he wants to try me on Cyclosporin for my urticaria and dermographism for 4 months(last appointment before xmas he said 'urticaria is idiopathic. live with it. keep popping the antihistamines, it might go away one day. maybe.'). Ive had the Urticaria and dermog. for 3 1/2 yrs now and need double the licenced dose of anti histamines to keep it at an acceptable level- im very keen to try anything that might possibly calm it down long term as you cant take the antihistamines im prescribed during pregnancy, let alone at the levels i take them.
Since last summer my asthma has been uncontrolled and im about to go to the difficult asthma clinic at southampton in 2 weeks. My cons want them to look at what is going on with my allergy system as the level of urticaria and the sudden difficult asthma puzzles them. Ive just got off Pred having been on it most of the time since July.
I know Cyclosporin is used in difficult asthma cases, and depending on what happens with the difficult asthma clinic im keen to give it a go and see what it does for the urticaria and perhaps as a side effect my asthma may calm down too.
Has anyone got any personal experience of using Cyclosporin? What form does it come in? does it have many side effects? Do you need regular check ups whilst you take it? Did it help your asthma and did they have to adjust your inhalers at all whilst taking it? (i know it can effect steroid levels in the body.