We had an urgent review with Maddies respiratory consultant today.
We've had a really bad week with symptoms. She had quite a bad attack suddenly on Sat and close to another on Sun.
We ended up on the ward yesterday as she was out of breath and wheezy. Hence the urgent review.
Anyway, today I was told that this is as good as we can expect! I asked what ''controlled' is. And was told that at the end of the spectrum that Maddie is, to expect these symptoms daily.
I feel as if I've been told there's not much else they can do for my little girl.
I came out and sobbed!
Maddie is out of breath several times a day! She can't keep up with her sister and is often in emergency situations! Just this morning, a couple of hours prior to our appointment, I was giving her 10 puffs as she couldn't get her breath. All she wanted was to walk!
I just dont know how to deal with this news!
It was manageable when it was just my emotions, but now Maddie can see how she falls short of her peers, it's heartbreaking!
Sorry, don't necessarily want replies, just need to get it out