Saw Maddies cons yest who is now referring her to the childrens hospital for further input. He said that her Asthma isnt responding as it should to the meds etc. He said that she needs further tests to establish what is going on and has expressed his concern with going into the winter months.
I also showed pictures of her face when swollen, described her choking events etc. Shes had 4 courses of pred over the last 6 months and thats in whats supposed to be her best 6 months! Shes already on Seretide, Montelukast, antihist's and ventolin.
He has said she'll need a broncoscopy. Im soooo scared of this. My poor baby! Just feel so guilty, like I couldve done something different for her. Maybe Im not getting her meds into her properly? Maybe shes not taking the whole dose? Maybe maybe maybe!
Has anyone any experience of a broncoscopy for a child?
What are they looking for??
I feel so churned up inside by this. She looks well (apart from swelling in the face after triggers, plus her purple bags under eyes), she is active and chatty. I just cant get it into my head that shes poorly poorly! The professionals think she is though. Day to day we manage fine, although we're scared to leave her with anyone in case she chokes.
Sorry just needed to let it out. Feeling quite emotional with it all. Guess ive been burying my head in the sand. It isnt until we have an appointment that it all hits me again!