Told by Maddies consultant today that she is very very severe and ""children die with asthma as severe as her""
I kind of knew this but it feels very strange to hear it from a professional that is dealing with my little girl.
The thing is, he said that he wishes what she had was called something else as 'Asthma' seems to be seen as such a lightweight condition these days. There's not enough awareness out there about it's severity etc and how it really truly effects people on the severe end of the disease.
What can I do to get folk to take Maddies condition seriously? When I say she's got Asthma, people say ""ohhh, Asthma!"" as if to say ""is that it?""
Our other daughter has mild Asthma but her symptoms are getting ridiculed by staff at her school. They refuse inhalers etc as they say she doesn't need them or they are ""too busy"" to give them!! Just an example first hand at peoples ignorance!
How can I get people around me to see what my daughter is up against??