breathing ok

[music]

was told i had copd in january so am now on seretide 500 and i feel ok ..could i be on this accuhaler for some years before i need to have oxegen...i do exercise and have packed the smoking up..is there anyone that has been on this for some years or has this copd progresses i will be on oxegen next year or two

[stone-UK]

Hi

Oxygen is not guaranteed for everybody . Nor is it suitable for everybody .

I had a blood test, taken from wrist over 2 days , which shown I was ok, I am severe 28 percent.

Oxygen is only used to maintain other vital organs.

[music in reply to stone-UK]

thanks for info stone may i ask how long you have had copd..i am 56 just been told i am moderate 62 percent

[stone-UK]

Hi

I was diagnosed in 2006 with severe 34 percent ,

I must have missed mild and moderate.

I had a private doctors report several years previously indicating signs of emphysema , total ignored ,like you do.

I am 66.

[music in reply to stone-UK]

yes know what you mean ..think you are doing well at 66 has you were diagnosed 6 years ago with severe.. did you pack up smoking when you were told.. i packed up just like that when i was told has may have frightend me a little has was always led to belive that emphysema was a death sentance.

[hufferpuffer]

Hi Music, I have been on Seretide 125 Evohaler for several years, then Spiriva, then both and since last week the same as you Seretide 500 accuhaler ( plus Spiriva and Ventolin ) , not been prescribed oxygen as yet ( awaiting assessment ) but what do you think of it? I found the first inhaler blasted the shot of medicine straight to the back of my throat and I sounded more and more like a darlek every day, but this 'accuhaler' seems to be at the back of my tongue instead of my lungs! ( remember to rinse, gargle, wash it away!

It could be years if ever you get prescribed oxygen depending on things like retaining c02, and wether your other organs need it or not, there's lots of info to your right where it says ' Popular tags in questions' I'm hoping I can have it for exercise, gardening, housework etc., I know I've had copd for well over twenty years, it realy is slowed down by giving up smoking , well done for packing in,best thing you can do plus keep up the exercise and learn about breathing techniques etc,most of all dont worry and focus on all the good things in life! x

[music in reply to hufferpuffer]

huff puff thanks very much for this info and wow 20 years and not on oxegen i am on this seretide 500 and seems fine i dont get breathles and have built up walking on treadmill for 5 miles takes 1 and a half hours but my viose sounds horsey when i talk i sound like rod stewart.. wish i could sing like him.. i still work part time and i cant beleive how exerciseing really helps but i know the time will come when i cant exercise no more ( sorry about the spelling )

[stone-UK]

Hi

More or less , it is not a death sentence , you have to change you lifestyle , smoking, diet, exercise , avoidance .

You have to be aware of pollutants which can trigger a reaction, and avoid. Pulmonary Rehab may be suitable ask your GP. For a referral .

[music in reply to stone-UK]

will do cheers

[Mizzymac]

Hi

I was first diagnosed in 1996 with mild copd , am now 42 years old , severe stage 31 % now . I'm not on oxygen . I'm on Seretide 500 , Spiriva , salbutamol. l have been for many years now . I find these medications are a great help ! Unlike yourself i didn't take heed of doctor and continued smoking . I'm in the middle of trying to quit, had two failed attempts so far but determined to get there .. You seem to be doing the right things Stopping smoking , well done you ! exercise and a good diet all helps. Good advice above .

Mizzymac

[Puffthemagicdragon]

I was diagnosed in 2011. Straight in at very severe 27%. I got breathless AFTER giving up smoking. Such is life. My O2 levels at rest are on the borderline of 88-90% so I'm on a very small dose of oxygen. 1/2 litre per minute for 15 hours. Usually when I'm asleep. I still work at my part-time job I had before getting diagnosed and feel better now than I did then as I have had proper tests and am being given the correct medication. Seretide 250 and Spiriva. Salbutamol for emergencies. I get around ok and just get breathless when overdoing it.

[Lynne1955]

Like Puff, I had no symptoms until after I quit smoking.

Diagnosed last year, I am moderate at 55%. Although I get breathless, it doesn't really affect me too much.

I am positive, I exercise quite a lot and eat healthily. I try to avoid people with infections, but as I work, that is not always possible.

I am on Spiriva and am 58.

Lynne xx

[caroleoctober]

Hello Music

I posted this yesterday on another newcomers blog to show them life goes on so here it is for you! You can still have a very good life with copd. I have emphysema and was diagnosed 13 years ago, I am now very severe, stage 4, and on oxygen 15/24, the oxygen is not so much to help the breathlessness but to protect the main body organs to ensure they get enough oxygen to work properly. I go out nearly every day either with my husband or by myself, I drive or use my mobility scooter, I spend days out with my family and have holidays in our little caravan and at family that live away. I potter in my little garden and look after my two little shih tsus. So really you can see my life has not altered much except that I gave up work at 67, I am 70 going on 50 now, and do things more slowly and with rests in between to get my breath. I think I live a full and happy life for someone my age and I posted this just so that you could see that a good life goes on as long as you eat well, avoid infection, excersise and take your meds. My glass is three-quarters full. Oh I forgot to say, I have appointments for assessment for pulmonary lung valves, there is a link to a blog if you are interested: bitz-and-bobz.co.uk/copd/20.. If there is one near you join a Breathe Easy group, you will find them very helpful, details are on the BLF home page.

Carole x

[music in reply to caroleoctober]

thanks very much carole it looks to me your doing well and thinking posertive.. may i ask what stage and your lung % was when you were diagnosed

[caroleoctober in reply to music]

It was 13 years ago and I was severe but I think I had had it for a few years before that, just creeps up on you. I can't remember what my lung % was but it is 26% now

[Hidden in reply to caroleoctober]

hi carol.ave yust been reading ur words.i am 63 a mum.gran.great gran.i am copd moderate spimerty test was 67.dont understand it.ceased smoking the day i found out,4 and alf month now.i have serotde 500.twice daily.and a blue inhaler .but dont ure it.makes my nose bloked up.i just steam my nose over hot water bowl with 2 tidgy crystals in for a minute.seritide i use it 10am.10pm.but it seems to burn my left shoulder blade after ive used it.i am telling my new gp nx week bout it .take care.

[Hidden]

hi.i was diagonised at xmas as moderate copd.test was 67.i stopped smoking there and then.im 63 a gran.an great gran.id never heard of copd never.i was givin seritde 500.and a blue inhaler.dont use blue 1 as it bloked my nose up wen i tryed it in january.i steam my face with hot water over a bowl 4 a minute.ad 2 tidgy crystals in thats it.fingers crossed for all of us.this site wen i found it.helps to talk with ppl in the same boat.ear in oldham there isnt really any up dates on copd .well ive been told its been arond donkeys years copd.well why asnt anything been done 4 it.like cures and advance theatments.ive seen over the years tv news and papers.for drug addicts rehabs.doing this and that for them alcolics rehab treatments for them.transplants etc.but never on tv anything about copd.surely its in same catagory.drugs drinks cigarettes.but are we the hidden group and why is that.well im not hiding i worked 30 yrs in the mills.ave never drank nor used drugs.just the bldy cigs.well stopped them end of.am not goint to hide .am not a bad person.and none with copd are either.we have never had to rob houses 4 this habit or attack any1 god almighty.but we dont get mentioned .why.take care

[brooksju in reply to Hidden]

Well said,I couldn't agree more, you say you worked in the mills too, I do believe that it not just the ciggys although they haven't helped, I worked in a hospital laundry for 20 years, as you say there has not been a crime commited yet we suffer but there are always people worse off than us, take care.

Ju

[Hidden in reply to brooksju]

hi brooksju.thank u 4 reply.yes i was a spinner doffer.then just a doffer later on.and hospital laundrys well id imagine be basement job.old pipes rusty antique ones harbouring all sorts of pollution.i stopped the cigs over 4month now and wont ave them again.but if my ignorant old gp ad acted on my xray june 2012.i really blve i woulndt have gone to moderate copd .i wasnt ill june 2012 just pain 24 /7 down left side under rib cage.nothing elz wen xray came bak.gp said ok no action needed.i paid for reports after i got really ill at xmas .thats wen i read it .god .wat a gp.i cud have stopped smokin june 2012 if hed ave acted.as they tell u.soon as u cease cigs its suppose be better 4 u.8month wasted.an in med practise nothing on copd no leaflets nought.take care .as u say thers ppl wors of

[music in reply to Hidden]

hi caroll this is so true what you are saying . i have always known about lung cancer but never heard of copd and think if i had i would have packed up smoking sooner.. my doctor has not evan give me any leaflets info about copd just said to come back next year for another breathing test so thank god for BLF..i worked in a flour mill and have read that flour dust could have helped me get copd but i know its 40 years of smoking

you take care now

[Hidden]

hi music thank u 4 reply.neither my surgery no leaflets nothing .but stripy leaflets 4 lung cancer arthiritus asthma tb things like that but no leaflet copd.immigration welfare things there is them.housing aid them.interpreters them leaflets.mother baby leaflets .nothing sayin copd.and it was onlybuilt few yr ago on glodwick rd.oldham marvellous eh. how do u get in touch with blf .ive bin of smoking 4alf month now and im never bak on them ever.am moderate copd.and i got a new gp thank god .take care

[terrzy]

i have been on seritide 500 for 12 years. iam now on oxygen at home for 6 months.i am at end stage of copd,and under hospice nurse[so helpful] but im still here. try to be positve,and adjustt your lifestyle accordinly. so i would say you have plenty of time left,but you must adjust. good luck.

[oldgramps]

been a asmatic since 1969 so took the medication from the docs at the time 4yrs ago told i got copd whats that i said have you every smoke yes well thats it mmm??? packed it in 25 to 30 years ago i said had polio when i was young walked to work with the SMOG not just mist and been in the motor trade for 50 years coal fires sever winters do you think that dint help BLANK BLANK SO I SAID IS COPD A COBINATION OF ALL THESE FACTS I AM STILL ASKING plus the fact every one is diffrant so all the past goverments have coverd it all up they dint mind when they were taking in the taxes ect so its all coming to light you dont relize the amount of people suffer from copd you only think its you un till you get on this site good luck to all [oldgramps]

[Hidden]

I started on seretide 500about 10yrs ago,did so well on it they dropped it to 250,I have asthma and currently have a chest infection ,but most of the time my asthma is under control

[music in reply to Hidden]

thanks meg