Hi does anyone on here have a baby/ c... - Lung Conditions C...
Hi does anyone on here have a baby/ child with interstitial lung disease?
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Hi, I have done a search of the disease within this community and it's coming up with nothing I'm afraid. For information and to ask if they know of any such forum you'd be best calling the BLF helpline on 03000 030 555 (open 10 - 6 I think) or email them at enquiries@blf-uk.org. Sorry I can't be more helpful, but I believe the BLF helpline will be able to help you. Libby
Hi, I see that this has not been updated for some time but I have a baby with a rare Interstitial Lung disease.
Thankyou, I will do that. My babies condition is very rare and we feel quite alone. Its very kind of you to look for me, i'll ring them and have a chat x
Hi there,
Try looking at the British Lung Foundation Home page on lunguk.org/
If you look at the tabs at the top of the page you will see "lung health" and from there a drop-down menu showing "lung conditions" and "childrens lungs". I would also strongly recommend that you ring the BLF Helpline on Monday. There are so many conditions that come under this heading e.g. I have Ideopathic Pulmonary Fibrosis, that it is probably best if you discuss your individual case with them.
X
Hi ,sorry I dont know how to post a link but there is a charity dedicated to childhood ILD based in the uk.childlungfoundation.org.I would contact them most parents with babies/children get information/support from them .Hope this helps Katie
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Diagnosed with Interstitial lung disease
Anyone here supporting a child with lung issues? 
Interstitial lung disease and polymyositis
Interstitial lung disease with no full diagnosis 
