Hello I am new to this site I found it after searching for ILD in the Lupus UK site.
I am diagnosed with SLE in 1998 and about 3 years ago I went for a scan for my kidney and by accident a small part of my one of my lung show up in the scan with scarring.
After further investigation my kidneys were fine, but I was diagnosed with ILD. My lungs has scarring and fibrosis.
My problem is I have developed a cough for the past 2 plus years and it is just getting worse especially when I weak up in the morning I will be coughing for a good 30 minutes. When I discuss it with my thoracic consultant he doesn't seem concern. I am not on any treatment for it only the SLE which is hydroxychloroquine and steroids.
It is making me so depressed as I am frighten to go out as everyone start staring and moving away from you when you cough since covid. I have done several covid test and they all came back negative. I have tried all the cough syrups I can get over the counter in the chemist and herbal shops and none helps.
Anyone have any suggestions of treatment that I could speak to my consultant about as I have an appointment with him in the next few weeks. Thanks Polly