know I am a baby but.....: Am too... - Lung Conditions C...

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know I am a baby but.....

12 years ago•10 Replies

Am too scared too, check myself [ I can convince my self of anything negative] I as you knw was diagnosed last june had spiro test told mild to moderate copd, nurse said shouln,t get much worse, but I,m in the middle of another flair up, a book I have by a professor says copd isnot " a death sentence" I gave up smoking 10 yrs ago, was quiet heavy, smoker , are our lives shortened dramatically please I,m very anxious right now for some reason, .....thank god for all of you, as you know my husband has anger problems so I have no one else to talk to , sorry all love jude

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elian12 years ago

Jude love, that professor is RIGHT it's not a death sentence and as long as you follow your GP/respiratory specialist/nurse's advice and instruction, get as much exercise as you can comfortably manage and don't forget to eat well then you should go on for years and years

I'm in my 13th year of COPD and feeling good about it I may be jumping the gun a bit *touches wood frantically* but I haven't had an exacerbation in almost a year now all due to the brilliance of my respiratory team and some effort from me.

Keep on keeping on Jude........... and if you feel the need to talk you can always send me a private message, or alternatively, have a chat with one of the BLF nurses on their Helpline

lavender112 years ago

That is really good advice from elian Jude and there are many more on this forum inlcuding myself who have lived with this many years since diagnosis. I was taught Despair is the biggest sin in the book so I avoid the feeling at all costs and have learned to try to keep cheerful for the sake of my son and for myself really and you will too. Taking the medication of course reminds us constantly of being ill but there must be millions of people who have to have daily medication for different and sometimes very much worse illnesses.

Keep posting and speak to your doctor to see if you would benefit from anti-deppressants, if thats the right spelling, or from a bit of physio or counselling. Look after yourself as much as possible and you'll be fine xx

medow12 years ago

Ah banner, all the above advice plus, something I posted a while ago about someone celebrating her 83rd birthday, 'had copd for years' everyone says, she's in really good nick, and back in the day you never saw her without a cig in her hand, think she gave up when she was about 70 a) because her chest was playing up b) because she thought smoking at 70 was unladylike ! Live in the moment, you have heaps of moments in front of you x x

12 years ago

Hi Jude, My husband always feels really anxious when he has a flare up - will he ever be better? Is he getting much worse? etc. etc. I think that is quite normal and the problem is that it can take a while to recover from an exacerbation and I am sure you will. My husbands GP said exactly the same as your nurse - there is no reason it should get worse. As a bystander and carer - in ten years I dont think it has got worse. I think he is able to manage it better. Try to enjoy your life and look forward to Spring and Summer. TAD xxx

12 years ago

Hi Jude

((((HUGS))))

brooksju12 years ago

Hi Jude, I agree will all the above comments, I find exercise and a good diet is the answer to a good quality of life living with copd, I was diagnosed a few years ago and I found that worrying and getting stressed made things so much more difficult as being anxious can cause breathing problems, I have learned to think positive and feel so much better about life now, my family are important to me and I don't want them worrying constantly either.

Take care, soon the weather will get better and we can enjoy some bright days and warmth.

Teigy xx

banner12 years ago

OH BLESS YOU ALL , YOUR KINDNESS HAS ME TEAREFUL, I DO NEED TO EXERCISE MORE, BUT HOW? PLEASE ANY IDEAS , I HAVE A ARTIFICIAL HIP, ATHRITIS IN SPINE AND BALANCE ISN,T GOOD, [ NOT LOOKING FOR SYMPATHY JUST STATING FACTS] I DO THINK YOUR ALL RIGHT, "FLAIR UPS " DO MAKE US MORE FEARFUL,ALSO LIVING WITH HUBBY IS HARD, HE HAS A PERSONALITY PROBLEM, WHICH , MEANS "HIS" ROUTINE , MUST NOT! BE DISTURBED,BUT I LOVE HIM, WHEN HES GOOD HE,S VRY VRY GOOD , WHEN HE,S BAD HE,S AWFUL, [I FEEL ASHAMED SAYING ALL THIS] IT SOUNDS AS THOUGH I,M LOOKING FOR PITY, AND I,M NOT, IV,E ALWAYS BEEN THE "STRONG" ONE, NOW FINDING IT HARD. ANY TIPS ON EXERCISE PLEASE , DO GPS , DO GROUPS FOR US? WOULD GET ME OUT OF THE HOUSE FOR A BIT, THANK YOU ALL FROM MY HEART LOVE JUDE

Phillipa12 years ago

hi,to all and thanks for contributing to this forum ,its so comforting getting all this advise from all of you, i have stopped smoking but still need a prop at times ,has anyone had any experience with 10 motives the" safe" cigarettes ie do they make anyone cough or wheeze ,so grateful for any replies thanks phillipa

banner12 years ago

GREAT NEWS I DID SOMETHING POSITIVE , I MAILED , OUR TEAM ABOUT EXERCISE 2HRS LATER !!!!! I HAD A LOVELY LADY ON THE PHONE, GAVE ME A NEAREST BREATH EASY NUMBER , AND I RANG MY GP,S AND GP IS DOING A REFERAL TOMMOROW , FOR A "LOCAL" EXCERSISE GROUP FOR FOLKS WITH PROBS, STILL HAVE ANXIETY , BUT THROUGH COUGHING AFTER TRYING TO DO EXERCISES, [ THE NURSE SAID NOT TO!!!! IN FLAIR UP} BUT I WAS A COWARD DIDN,T TELL HER I HAD DONE THEM, [ HANGS HEAD IN SHAME] OH MY FRIENDS I DO LOVE YOU ALL AM SO GLAD YOUR HERE, LOVE JUDE

in reply to banner12 years ago

So pleased you got a result. xxxxxxxx

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