If any of you are fortunate (?) enough to be under the care of the Brompton Hospital, you may already know about Singing for Breathing. Unfortunately I cannot do it as I am not a patient of theirs. Does anyone know of any groups in Berkshire who do it?
As far as singing goes, it really is good for breathing, and well-being, and happiness. I am a volunteer at an Alzheimer's Singing Klub, and have found my breathing improved since I started. Due to our 'leaders' having abandoned us, my husband and I find ourselves running the singing aspect of the group. (We have a lunch first) Neither of us has a good voice and when I started there I agreed to do the bookwork, meeting and greeting, swore I DID NOT want to sing. Over the two years we have been running I have found myself helping with leading the rounds, and the partner songs, and I really love it. If we go wrong - it doesn't matter, everyone just has a laugh about it.
I sent for a CD about singing for breathing and play it in the car on long journeys, lots of breathing and singing exercises. If you ask (my friend) Google about singing for breathing, he will give you lots of info. Good luck, give it a try - even singing at home. With lung disease positive thinking is paramount, keep exercising (unless you are in a really bad way) keep siniging, keep POSITIVE!