I have recently been diagnosed with focal bronchiectasis.

[Bundle]

I don't know the exact details. I have an appointment at the hospital next month. I get a lot of chest pain and cough up yellow sputum. As I understand it focal bronchiectasis is a very mild condition? Any advice help much appreciated.

[Hidden]

i Bundle go to nhs choice web site type in bronchiectasis all the info you will need call back

[Bundle in reply to Hidden]

Ok thanks feel a bit lost because when I google it every website seems to say a different thing! Thanks

[Hidden]

Welcome Bundle

Sorry to hear of your recently diagnosis, I can't help you concerning you query although I know we have several members here with bronchiectasis.

The british lung foundation have their own information on bronchiectasis, here is their page:

blf.org.uk/Conditions/Detai...

For more information, help and advice, you may want to ring BLF helpline on Monday between 10am and 6pm on free phone number 03000 030 555

Hopefully others will be along shortly to offer you some more advice and support.

All good wishes

Zoee

[cofdrop-UK]

Hi Bundle

Sorry you have a dx of bronchiectasis. I too am a fellow bronchiectatic - had it for 64 years.

Non cf bronchiectasis can be mild or severe but should be treated the same. Our main aim is to try and prevent any deterioration and the best way we can do this is to clear the gunk from our lungs every day as if it is left there it will become infected. We also need to take frequent courses of antibiotics and the course is usually of a higher dose and for a longer length of time than someone who does not have bronchiectasis. Some of us nebulise bronchodilators and saline or hypertonic saline and some antibiotics.

You say you have an appointment at the hospital. Check out your respiratory consultant on your hospital site or on Dr. Foster to see what his/her special interest is. You really need a respiratory consultant who has a special interest in cystic fibrosis/non cf bronchiectasis. Your consultant should refer you to a physiotherapist who will teach you techniques for clearing your lungs and useful gadgets to aid this such as the acapella, flutter etc. He/she will find a technique which suits you best. You will need to do it every day - even when you are well. If your consultant doesn't refer you then ask him if he would do so. Physiotherapy is the most important thing you can do for yourself.

I assume you have alreaady had a ct scan as you have already been diagnosed. I hope your consultant finds a medication regime which will help you.

I am a member of bronchiectasis r us which is an international forum of peeps with bronchiectasis and there is loads of info, support and banter, started by a wonderful young woman we all love from UK.

Enough I think to overwhelm you for the time being. Please don't hesitate to ask any questions you may have.

With love

Cofdrop

[Bundle in reply to cofdrop-UK]

hi and thank you so much for this. Yes I have had a Ct scan which confirmed a few areas of bronchiectasis but wait for a talk with the doctor at the hospital next month. It is all so new and I had never heard of the condition until last week. Thank you for the advice re physiotherapy. This is a wonderful website and I have now stopped searching Google as there seem so many conflicting advise and I will look up Bronchectasis r us. thank you feel less alone now Bundle

[cofdrop-UK]

You're most welcome. If you use the same name on BRUS I will pm you as I use a different name.

Hope your consultation goes well. You are certainly not alone - there are lots of us - we're just good at hiding

XXX