Hi everyone, i'm a communications officer for the British Lung Foundation.
I'm looking to find someone (ASAP) who has had legionnaires' disease (or knows someone who's had it) that would be willing to share their story.
Help much appreciated. Thanks!!
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Hi Caroline, I think theres a few people in Edinborough hospital with it
Thanks for that.
Does anyone know personally someone who has recovered from Leionnaires' Disease who would be happy to share their experience?
Hi, I was very ill in 1963 with a form of *Legionaires disease* or so I was told. I was one of 5 in Wirral who caught this bug, 3 babies and 1 teenageer died (overnight I believe) I was the 5th - obviously I survived. I was treated with penicillian as the doctors did not know what else to do, I do remember my lungs where full and the Consultant called me the girl with the frosted glass chest, I lost 3 stone in as many days, the hospital were wonderful, the staff did everything for me. Thankfully I was strong enough to recover, altho it did take approx 3 months before I returned to work. Maximonkey
Hi Maimonkey,
Thanks for that, what an interesting story.
Do you still live in the Wirral?
Do you think you could please drop me an email on carolyn.mccole@blf-uk.org so we can chat about this further?
Thanks,
Carolyn
I have contracted Leginaires Disease in 2007 from a aircondition at a hotel in Rome.I can still not walk and I talk funny, but before I tell you the whole story.
I would just say, that I live in Denmark and are danish.Are you still interested?
Kind regards
Henrik Bruun
Well, I know this is an old message (I've just joined), but if you're still interested, I am currently recovering from Legionnaires Disease. I'm 50. I was a smoker until I caught it, now quit! I live in Sutton Coldfield, near Birmingham, but I caught it in August 2013 while visiting family in New Jersey and New York. It was a baking hot very humid summer there, so it looks like I acquired it from the natural environment, as the Depts of Health found no reported outbreak. I ended up in a New York Hospital in intensive care. The first few days were grim - my family were warned I might not survive. But with aggressive treatment and life support, I did. I recovered to an extent, but I'm left with much breathing issues and low SPO2, racing pulse, high blood pressure, severe fatigue and tiredness, and inevitable weight gain as any exercise is exhausting. I'm happy to tell the story if you still want it. Andy.
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Anyone got traceomalacia? 
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