Anyone got any advice

[Pugnala]

Well what a journey ive been having im just not sure any more who to listen to,4 years ago I stopped smoking as I got told I had copd and for 4 years ive struggled n continued to have chest infections one after the other also get told ive have mild heart failure n get put on 2 lots of tablets for that,and now after all the hospital appointments and still struggling ive been taken of heart tablets to be told I don't need them and also to be told they don't think I have copd and they think it's asthma my heads all over not sure what to do anymore been on treatment for copd for 4 years all is very confusing but none of this is helping still struggling to breath wheezing coughing and my chest is tight also my bpm is 45 or below has anyone got any advice please

[Hidden]

What an awful mess they've got you in!! Did they give you a CT scan? I was diagnosed with late onset Asthma, but after 3 years they sent me for lung function tests and a CT scan and it turns out I have Bronchiectasis. 😳 The Asthma nurse even believed (wrongly) I had COPD. 🤔 May I suggest you request a CT SCAN. 🤗

[Pugnala in reply to Hidden]

Thanku it is a mess im just confused with it all especially thinking I have copd for 4 years and it turns out I havent ive still got to have some oxygen blood tests but I have just had the big test in the glass box and not been explained the results properly yet but I know the numbers were 42 and 58 n think I am going to ask for another scan im currently struggling to breath wheezing n coughing only felt ok for just over a week n down hill again im really struggling with all this 🙄

[sassy59]

Hello Pugnala, I would agree with poems galore, ask for a CT scan and don’t take no for an answer. You’ve been messed around for long enough. Good luck to you. Xxxx

[Pugnala in reply to sassy59]

Thanku xx

[Hidden in reply to Pugnala]

BTW, welcome to our wonderful, friendly and helpful group. There are friends with all types of lung diseases. Most are quite expert in their particular disease, and there's always the BLF telephone helpline and website with many booklets to either download or send off for. You will be well looked after in one way or another. Please let us know how you get on. XXX 😳❤️

[Oshgosh]

Have they given you any inhalers? If you can get on the right inhalers,they might help with all your chest symptoms

If they’re telling you you have asthma,ask to see the asthma. Nurse at your GP surgery..

They had me on blood pressure tablets for 20 years. I didn’t need them.

Look after yourself. Write your questions down before you go to Docs

[Pugnala in reply to Oshgosh]

I've been on anora and salbutomol for 4 years also steroid one now n again but if its r8 what tgere saying that it's not copd now after 4 years surely ive had the wrong medication n they have made whatever it is ive got worse,over the last month the pain in my ribs and lower back is horrendous hardly sleep I have tried to get in doctors yet again this morning but no appointments im just wanting to feel at least a bit better so I can take my son to school xx

[Kristicats]

I agree with earlier suggestion ask for a respiratory physician appointment to get a ct scan done so you can feel confident you have the exact diagnosis. Take care Cx

[Izb1]

Hi Pugnala, I was diagnosed and treated for asthma for years and kept telling the doctor the inhalers were making me worse. It wasnt until we got a new doctor and after having a ct scan it turns out I dont have asthma but bronchiectasis. Its so frustrating being treated with the wrong medication for a long time and who knows what damage has been done. The only thing you can do is move on from now. I would insist on seeing a consultant as i dont think the gp/nurse has enough knowledge to diagnose or treat properly. Good luck x

[Pugnala in reply to Izb1]

Thanku for your reply and glad you got sorted out I ended up at doctors to be rushed to a room n put on a nebulizer and given steroids n to be sent to hospital where I had to have nebulizer r8 through till early hours they wanted to keep me In as my blood pressure went r8 down too but I said I wanted to cum home n I would go back.im currently now running a temp but for now breathing seems ok but I am just sat fingers crossed I don't have to go back