oramorph

[angie26]

does anyone use this for breathlessness? It does say in the leaflet not to use if you have copd or if you have a breathless ness problem and yet I’m reading you can! Confused!!

[Spacecat1]

Gp put me on this for breathlessnexs and anxiety problems and it works well😉❤️

[angie26 in reply to Spacecat1]

Ah thank you

[Biker88]

the trick is not to read the leaflet, Oramorph in a very low dose is a standard treatment for breathlessness as it relaxes the chest muscles. At a high dose it can relax the muscles too much so go with what your GP has prescribed. I have COPD and it helps me I’m on 1.25 ml every 4 hours as required

[angie26 in reply to Biker88]

Thank you

[leo60]

So confusing isn't it?! Hi Angie, I take Oramorph and find that it helps no end. I use it mainly when I go out, as I have developed a bit of anxiety about leaving the house. I find it relaxes me enough (but not too much!) to be able to breathe through the anxiety instead of getting het-up, which then of course makes your breathing worse!

I was very apprehensive to begin with due to it being a morphine derivative, worried I may be "out of it" or become addicted, but no such.

It's another tool for us, and let's face it we need a full armour!

Good luck xx

[angie26 in reply to leo60]

You are so right Leo60 I have had the most awful December and January, coughing, clear sputum just feeling can’t take one step in front of the other as severely breathless, I have ambulatory oxygen of 1 litre but I have had to use it so much more! I have had the community doctor and nurses out to me and done bloods and other tests and everything normal, next step is back to respiratory or the consultant but I have oramorph for severe fractures due to osteoporosis! My husband has been very ill for the last 6 months so I have been running here there and everywhere, hospitals and doctors so as I’m driving was afraid to take the oramorph. I don’t drink as such but I do enjoy a very small glass of wine with a meal, is this acceptable?

[Karenanne61 in reply to angie26]

I'm allergic to morphine so was prescribed oxycodone which has the same effect. I find it helps. 1.25 mls 3xday then 2mls at bedtime. I prefer the liquid as you can adjust the dose to suit the circumstances.

[_9carole in reply to angie26]

Hi I was advised to take it when in hospital. And then at home. I felt it made my heart beat fast. But only taking half of teaspoon. Don't know if that was enough? Do you take it every day? I am on oxygen 1litre but don't get out much. How do you get on in driving with oxygen?

[angie26 in reply to _9carole]

Yesterday was my first day so I was a bit scared to find I had those symptoms, I’m going to stick with the 2.5 from now on, the reason I have it is I have very painful fractures due to osteoporosis and would take it periodically, I then read about it being used for breathlessness and started it for that, I am on 1 - 3 L ambulatory oxygen but December and January were awful, continual coughing and terrible clear sticky phlegm and I became so breathless as a result, had blood tests etc, no raised inflammatory markers all tests normal, waiting to see respiratory, I read the nhs article about using the Oramorph for breathlessness and thought I’d try it, it has helped a bit but when I get the dose right etc. hopefully I can breathe easier. I spent the last 6 months caring for my husband and I think I overdid it!!!

[leo60]

Oh you have been up against it, poor you. The leaflet says, I think, something like try it to see how it affects you before you drive. I have never had a problem, but we are all different! It does say to avoid alcohol with it, but I don't think a small glass of wine would be a problem.

All the best, Laurie xx

[angie26 in reply to leo60]

Thanks agai

[Olivia-Dre-123]

As far as I am aware it's good for COPD it relieves brethlessness

[Jack70]

seems to work better than inhalers. Diazepam works even better it’s just trying to explain this to dumb doctors

[angie26 in reply to Jack70]

Thank you

[garshe]

I have severe COPD and health anxiety. My Respiratory team prescribed 1.25ml of OraMorph 4 times a day xx.Sheila

[angie26 in reply to garshe]

I have just started, my first day and hadn’t realised to only take the 2.5 measure and took the 5ml 3 times the first day and 1 of the 2.5 I was awake at 2am and couldn’t get back to sleep had a weird dream too, I weighed it up and decided that my body was asking for it so I eventually took a 1.25 measure and did get back to sleep! was that withdrawal as I was taking the the large dose? I was quite scared!!

[garshe in reply to angie26]

I use the syringe as I was guessing and taking a sip from the bottle. My nurse saw me and told me that was dangerous and I must use the syringe for correct dose. I now take 1.25ml via the syringe 4 times a day xx.Sheila 👍

[B0xermad]

My mum had copd and was put on regular oramorph

[angie26 in reply to B0xermad]

Thanks

[Golf7cyclex]

hi, I’ve just been prescribed oramorph 2.5 mg three times a day and must say it really does help with my breathing and anxiety, I have copd and thickening of the lung .

[angie26 in reply to Golf7cyclex]

Thank you, I too have this thickening of the lung, I hope it continues to help you

[pasquino]

Used for a while, good results, one ONLY massive side effect: very strong CONSTIPATION, never anymore.

But is worth a try, your case could be different.

Pasquino

[Numptybrain]

I’ve been taking oramorph for a long time for pain relief and breathlessness and it definitely does the job.

Take care

Wendy xx

[buddy2blue]

yes I use for breathlessness as well AF I was by the GP awhile ago now and it really has made a difference

[marian-b]

Hi my gp put me on this to help with my anxiety I get because of my copd it does help a lot I'm on 15mg tablets twice a day I didn't get on with the liquid good luck

[Mellywelly]

That's weird as that was what they were giving my mother in the hospital. She had copd and cancer. Your best bet is to ask your pharmacist 😉

[SparkySW123]

I have COPD and use it for breathlessnes and anxiety and take a 2ml dose up to 3 times a day. It certainly helps. You' ll see that some folk take more than that.

[cazzabeansprout]

My GP put me on Oramorph for breakthrough pain as I have fibromyalgia and Osteoarthritis. But I also have Bronchiectasis and I can take 2.5ml every 4 hours for breathlessness. I find that one 2.5ml dose is usually enough to help Me when I'm really struggling. I hope this helps you too sweetheart xx

[angie26 in reply to cazzabeansprout]

Thank you so much, I too have bronchiectasis and I think that was the cause of my illness in the last two months. If you’re not taking it all the time do you feel any withdrawal?

[Mrbojangles]

be careful it can be very addictive and causes weird side effects.

I tried scratching my thighs off causing bleeding, had to cut my nails.

Good for pain but in small doses.

I’m off it for good and switched to oxycodine via a syringe.

[angie26 in reply to Mrbojangles]

Thanks for that, I definitely felt I had a weird episode although most say in small doses it’s not addictive.

[corriena in reply to angie26]

It is still adictive but as long as you keep to a low dose and see your gp if you have any strange affects or the oramorph dosent seem to be working as well. Never increase your dose 😊

[corriena]

Iv been on oramorph for about 8 years low dose and iv had no problems . And seems to help well. (I have empacemia, bronkiextasis, asthma and alpa 1 antitryipsin deficancy)

[angie26 in reply to corriena]

Oh you and me both! Do you take it regularly, every 4 hours ? 2.5 ml?

[Chinadoll81]

I actually was prescribed this for severe pain from gallbladder Dr who prescribed told me it is also used for COPD patients. I use it for the times I feel very breathless. It certainly.helps. blessings and love xxxc

[Yeo58]

I was taking oramorph for pain management following a hip replacement, I certainly didn’t notice any increased breathlessness…..just made me sleep all the time 😴