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[Heywood196]

hi I’m sue i am 62 I have been struggling with copd for a few years now get very breathless on walking and doing daily tasks

They say I have emphysema also

I have tried different inhalers but none that affective

I have just started using the trixeo atmosphere and would like to ask if anyone else uses this inhaler and does this help

Thanks for any advance

[Ern007]

Hello Heywood196. - Welcome to the forum.

Sorry you are strugg ling with "emphysema" which is in the all catching COPD lable.

I find if I am struggling I find little help from inhalers.

I take Fostair (Preventer) "Ipratropium inhalation may" which IMO is the best for COPD, and Salmanol what does not "seem" to help much.

If you are struggling with not much relief relief from your inhalers, maybe time to see your COPD nurse or GP. Maybe your inhalers need changing to get you some better relief,

At the monent I am on Pred and Doxy as struggling but that an option when nothing else works.

Take care,

[Heywood196 in reply to Ern007]

hi thanks yes I have been to the hospital just recently put me on new meds so hopfully they are going to work better for me hope you are doing well to

[Ern007 in reply to Heywood196]

I hope your new meds will work. I think the hospital might have given your better than you had.

Thank you I am half way though course, better than I was for sure.

Take care and tell us how new meds have worked.

[sassy59]

Welcome Heywood, I agree with Ern. Contact your GP or nurse and see if they can help you. My hubby has COPD (chronic bronchitis) and uses a Salamol inhaler when he needs to otherwise he uses his nebuliser twice a day. Hoping the Trixeo works for you. Xx

[Heywood196 in reply to sassy59]

Thanks for your reply yes I have seen my specialist and on new meds so hopfully they work for me I have the salami also hope your hubby is doing ok

[peege]

As Ern says, copd and emphysema are one and the same but you're in the right place to share experiences of it.

[Heywood196 in reply to peege]

Yes I found that out Thankyou hope your well and thanks for the comment tc

[watergazer]

Hi and welcome Heywood. Sorry I have no advice regarding COPD. Hopefully your new meds will be better and than your last. X

[Heywood196 in reply to watergazer]

Thanks very much

[leo60]

Hello Sue and welcome 🤗 I have severe COPD and find life difficult too! I’m glad you have been put on a different inhaler though I know nothing about the one you are on! We all respond differently to the various inhalers, so it can take some time to find the right one, as you probably well know. I hope this is the one 😊

Keep in touch xx

[Heywood196 in reply to leo60]

Hi there

Yes I have been on several

Now and this one I hadn’t heard of it

All we can do is try Carnt we and see how it goes

Thanks for replying Leo

Best wishes to you

[Rosa17]

HelIo, I don't have COPD, but I do have breathing issues. I cant help with inhalers like others, but I know how scarey it can be - (it is for me), I hope your new meds help soon X

[Heywood196 in reply to Rosa17]

Thankyou Rosa only recently started new ones will see how they go thanks for replying and all the very best to you

[PaulineHM]

Hello Sue,

Sorry to read you are struggling- horrible isn’t it ?

I wonder when you last had a medication review? The in house pharmacist at your local surgery might be able to help you ? Just ask for a review of your inhaler.

Have you read the COPD booklet from

asthmaandlung.org.uk ? There is much to keep ourselves fit and well.

Hope you feel better soon.

Go well

Pauline

[Heywood196 in reply to PaulineHM]

Hi Pauline

I went to the hospital to the clinic there they changed all me meds and inhalers so hoping it’s gets easier changed my hypertention to had lung tests and now starting Pulmonary rehabilitation have to keep going don’t we

Thanks for replying and best wishes to you

[PaulineHM in reply to Heywood196]

Thanks for letting me know and it's good to read that you have had some help. Hoping things begin to improve for you now.

[Heywood196 in reply to PaulineHM]

Thankyou hope so to take care x

[Izb1]

Hi Heywood196 and welcome to the site. I find most inhalers don't work for me and I have tried loads. I have bronchiectasis and recently found to have overlap asthma. My consultant put me into Fostair Nexthaler which really has helped and reduced the volume of mucus, the only problem it has given me an irritating cough. I saw my consultant last week and asked if it could be the powder that is giving me a cough, we have agreed to try the non powdered again but I have a bit of difficulty with my rheumatoid pressing down the inhaler but will try again. I hope this new inhaler works for you but if not go back and try another x

[Heywood196 in reply to Izb1]

Hi thanks for the info yes I sure will go back if it dosent work only been on this new one for a few days so will see how it goes take care

[Alberta56]

Welcome to the forum.

[Heywood196 in reply to Alberta56]

Thankyou

[anng1814]

Hi Heywood 196,

I tried Trixeo - I found it good for breathing after a few days, but unfortunately, it affected other parts of my body and I had to stop taking it. I'm back on Trimbow 87/5/9, with Ventolin backup. I don't find this as good, as it seems to wear out, by late afternoon.

I have a horrible lung function test tomorrow, which I am not looking forward too, so maybe an alternative inhaler will be offered!

[Heywood196 in reply to anng1814]

Hi thanks for the info hope the lung function test goes well tommorow good luck

[Karenanne61]

One of my inhalers is Trixeo, it seems ok. Like many of us here, I'm on many meds so think it's probably the combination that help me.

[Heywood196 in reply to Karenanne61]

Hi Karen

How long have you been using the trixeo thanks sue

[Karenanne61 in reply to Heywood196]

I honestly can't remember! Sorry! I have tried several inhalers and meds and the regime I'm on seems ok at present .

[Nicholatracy]

welcome. Hoping your new meds work but recommend totally stopping smoking (I know easier said than done 😄). Exercise if you are able and watch the diet…….Big thing, stay away from Dr. Google. I too have moderate emphysema and totally understand being short of breath. Stay strong 🐞

[Heywood196 in reply to Nicholatracy]

Hi nichola

Yes 100 per cent need to stop

I’m going to give it a go and try

Tryed so many times 50 years a smoker so hard but I will give it another go

Thanks for replying and take care

[Patk1 in reply to Heywood196]

Welcome to the forum and gd luck in stopping smoking.other posters have suggested help with patches,tapes etc via pharmacy.yr condition may well deteriorate more rapidly if u continue. All the best

[TheLegend]

Hi Heywood196,

I'm a browser on this site, (65yo F) read your post re Trixeo Inhaler, I use the Trixeo Aerosphere, was prescribed early 2024, prior to that I had the Anoro Ellipta & Trelegy Ellipta dry powder inhalers which didn't seem to help much, at my annual COPD review I told the nurse practitioner they were not helping and she (reluctantly, because I refused to be fobbed off) suggested I try the Trixeo Aerosphere, x 2 doses am & pm, I use a spacer which I find helps me get the full benefit of each dose.

So does it help me?, I would say it was pretty effective through spring and summer months, I managed to get through each day without too much problems, still got breathless when trying to do normal stuff like vacuuming/weeding etc. Since the weather cooled and became damper I found it was not so effective and each day was becoming a struggle to achieve even the most simple tasks, like brushing hair, bending to put socks/shoes on, taking a shower, washing hair etc.

I am using my reliever inhalers (Salamol & Ventolin) more often too, from a couple of times a week in the warmer months to 3 or more times a day now, each day brings more difficulties, for me, it seems that damp air/fog/rain impacts my ability to breathe severely, cold frosty weather is not good but seems to be less debilitating than the damp or rain.

When I go out I wear a bikers snood around my neck, it can be pulled up over my nose as and when I need it and is especially useful when I go shopping, helps to keep germs at bay although I don't suggest they offer 100% protection but so far it seems to have worked.

The thing to remember is, everyone's needs are different, what works well for one may not be very effective for others, just because it works for her at No 36 does not mean it will work for her at No 48 if that makes sense.

Give your new inhaler a go, it can take a couple of weeks before you notice a difference, when I compare the Trixeo to the Ellipta's I would say the Trixeo has been much more effective for me, but while we may both have a COPD diagnosis, it will affect us differently so what works for 1 may not be so helpful for others.

If, after trying it for a month or so you feel it is not helping then go back to your GP and speak to your COPD nurse/Dr and ask what other treatments/inhalers are available.

Blessings & Light

PS - Get a copy of Allen Carr's Easyway To Stop Smoking, just read it, then read it again and repeat until it clicks.

[Heywood196 in reply to TheLegend]

Thanks so much you for your info that’s nice to hear its doing good gives me a lot of hope as all others have let me down

Yes I will look up the Alan Carr book and have a read thanks very much

Look after yourself and best wishes

[teresa297]

COPD is the umbrella term for long term health conditions and your lung condition is Emphysema.

[Heywood196 in reply to teresa297]

Thankyou teresa x