Hi, so hoping someone can help me. I have been a member of the forum gor a long time and read daily but rarely post. I have recently started using oxygen via concentrator for min 15 hrs daily which is fine. The problem I gave got is that I have psoriasis/eczema on several areas including my ears, neck and very severely on my scalp. All the preparations for treating this are extremely flammable. I have consulted with pharmacist and emailed various companies for advice/ suggestions with little success, particularly for my scalp, which is now in a dreadful state. It is making me so depressed and scared. Has anyone experienced this or can make any suggestions.
Thank you all so much.
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Maggity
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It’s no fun is it Maggity? My psoriasis is in exactly the same places and drives me mad! When I challenged my GP about the flammable ointment she had prescribed me she said “It’s not ideal, but at the same time you’re not going to go near fire while using oxygen “! I have relaxed a lot having thought about it, use the ointment at home (where I am mostly!) where I know I’m not going to catch fire!
Hello there, I think it's a psychological fear I've got - I feel like a walking matchstick and I am just trying to reduce the risk as much as possible. You would think there must be something. I have already spent a fortune and hours and hours looking up ingredient lists. I think I may need to treat my mental state as well as my skin and Lung conditions 😆. Thanks for your reassurance
Hi, I am not an expert, but highly unlikely that anything in the creams will combust spontaneously with increased oxygen concentration. Although the products are inflammable they do require a source of heat to ignite them. Oxygen on its own will not , in my opinion, cause ignition. The chemist ought to be able to explain all this to you with greater professional qualification than me. Take care, Chris.
Hi Chris and thanks for your response. I think it's a psychological fear that I have got as I do know that a source of ignition is required. I just feel like a walking matchstick as I have increased my flammability factor x2 (oxygen + creams/emollients) so trying to remove one of the risk factors. Not having a lot of luck so far though 🤔. ThanksMaggie
To help with the psychology bit, have you tried meditation? My wife uses meditation which certainly helps to think and act more positively. As we get older we all start to imagine dreadful things happening which is not only often untrue but also detrimental to our mental well being. Asking questions on this site is a good idea and helps us all to beter understand what difficulties others might have. They say laughter is the best medicine, but talking comes very close. take care, enjoy Sunday, Chris.
Hi, I also had severe psoriasis not only on my scalp but also over many parts of my body. After trying light treatment, many creams, methotrexate etc with varying degrees of success, in 2022 I switched to Skyrizi (a biologic needing an injection every twelve weeks which I self administer). Within two weeks I was 95% clear of psoriasis. This has remained the case so far. I appreciate that everyone is different and perhaps I have been very lucky but have you been offered one of the biologics now available? It might be worth considering.
Hello and thank you for your response. I don't think my condition would be seen as serious enough for that treatment as it's mostly eczema. There are topical treatments that will work but I am scared to use them because they are mostly highly flammable and especially from being oxygenated. It would be great if there was something I could take orally or by injection though. Thank you
Hi there, thank you for your response. The pharmacist has found me some that are paraffin free which is a start. Even the water based ones have ingredients that are flammable. I have spent hours and hours and money trying to find some that don't. You get things like Burts bees for example then you find it's got beeswax which burns longer than paraffin. It's really difficult.All the best to you and thanks
My daughter says this product helps her greatly with her psoriasis, don't know if it really works marvels like she says, but it's cheap and it won't hurt, it's made in Italy but you can get it from amazon.uk: Phytorelax Laboratories Cocco Vegan & Organic - Shower - Nutrie, Velvet Wrapped 500ml
If you have an area that requires a constant or regular moisturiser application throughout the day, such as around your nose or mouth, you could try NeilMed NasoGel or RoEzIt skin moisturiser for other areas. These may be available in some pharmacists or online.
Completely oil free products are very difficult to find, with many lines described as ‘oil free’ when they do contain small amounts of oil from various sources.
Check with your pharmacist to see if the above is suitable for your psoriasis/eczema.
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