Could you help us please?: Have you... - Lung Conditions C...

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Could you help us please?

AsthmaandLung profile image
AsthmaandLungAdministrator
16 Replies

Have you ever used our COPD Patient Passport?

We’d love to know how you found the experience, please email awilliams@asthmaandlung.org.uk with any feedback by 5pm Friday 17th May 😊

Thanks in advance

Helpline Team

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AsthmaandLung profile image
AsthmaandLung
Administrator
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16 Replies
Difficul profile image
Difficul

What is it please?

PaulineHM profile image
PaulineHM

I have looked at it in the past and need to revisit - can’t recall why I haven’t used it though.

Pauline

leo60 profile image
leo60

What is it please??

Bingo88 profile image
Bingo88

Never heard of it. Would like more information please. Brian

Karenanne61 profile image
Karenanne61

I have never heard of it. What is it please?

AsthmaandLung profile image
AsthmaandLungAdministrator

copdpassport.asthmaandlung....

AsthmaandLung profile image
AsthmaandLungAdministrator

I have posted the link above for anyone who would like to have a look

Thanks

Carol

Alberta56 profile image
Alberta56

Is there a bronchiectasis passport?

AsthmaandLung profile image
AsthmaandLungAdministrator in reply toAlberta56

asthmalunguk.typeform.com/t...

AsthmaandLung profile image
AsthmaandLungAdministrator in reply toAsthmaandLung

Hi Alberta56, please see link above for bronchiectasis passport

Alberta56 profile image
Alberta56 in reply toAsthmaandLung

Thank you.

O2Trees profile image
O2Trees

I have some feedback: re the one-time pneumonia vaccination, I do not believe it is accurate to call it a one-off, or once in your lifetime vaccination. Maybe this description is from when ppl were not expected to last that long!

I had the vaccination in the mid-noughties, then was hospitalised with double pneumonia once in 2015 and twice in 2018. Finally I got a second pneumonia vaccination after the second bout in 2018. I have been fine since then.

Having read here people saying they had another one after around 10 - 15 years, it would be good if you would draw attention to the fact that the efficacy of these vaccinations tend to wear off at around 10 years and they can request another one (booster, top-up, whatever it is called!) Thank you. :)

Musicalways profile image
Musicalways

Hi thank you for bringing my attention to this. I never knew a COPD passport existed. I have just used it and found it very useful.

AsthmaandLung profile image
AsthmaandLungAdministrator in reply toMusicalways

Hi Musicalways, thanks for the feedback, would you be happy to speak to a member of our health advice team about your experience using the COPD Patient Passport? If so, please email awilliams@asthmaandlung.org.uk

Thank you

Helpline Team

GSDowner profile image
GSDowner

I used this Patient Passport because I was told I had Emphysema by GP, given just Ventolin then ignored for 2 years. I used the report to go back (online) to Surgery although it took 4 months for a Practice Nurse to contact me and get referred to Consultant. I would recommend using this.

AsthmaandLung profile image
AsthmaandLungAdministrator in reply toGSDowner

Hi GSDowner, thanks for the feedback, would you be happy to speak to a member of our health advice team about your experience using the COPD Patient Passport? If so, please email awilliams@asthmaandlung.org.uk

Thank you

Helpline Team

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