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Anxious

Pasta247 profile image
14 Replies

hi everyone not been on here for a few months but I had a large pneumothorax in April plus pneumonia and I haven’t had a follow up appointment with respiratory yet but I have so many days of feeling anxious and worrying it’s going to happen again . Like today I’ve had muscle aches and sharpness in my left lung , my breathing is fine sats are good 97 but I can’t shake this worry , I’ve got to say it’s completely changed me as a person I was always doing stuff outgoing nothing phased me super healthy etc now I’m the complete opposite . Has any one else felt this way done reassurance would be really good . X

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Pasta247 profile image
Pasta247
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14 Replies

Oh yes. I am really with you. I had 12 weeks in hospital this year because my lung went down 4 times and I had two pluerodesis procedures when they put medical talc into the lung to attempt to hold the lung up. I am still in pain from the 4 lots of drains and the powder and worry every day in case it goes down again. I am just slowly trying to get my strength back and my confidence. My sats are also 97. It is your breathing, rather than pain which warns you if the lung has gone down again. Very important to gently keep the lungs clear of mucus. I can't suggest much except one day at a time. Don't do anything too strenuous, especially with lifting things or having your arms over your head. We can't let these things defeat us. I hope you feel better soon.

Pasta247 profile image
Pasta247 in reply to

thank you so much that has made me feel less alone in this and better thank you again I hope you continue to be well x

Nula2 profile image
Nula2 in reply to

Hope you feel better soon Littlepom xxx

Alberta56 profile image
Alberta56

I hope you and Littlepom both start to improve soon. xxx

Pasta247 profile image
Pasta247 in reply toAlberta56

Thank you it’s a tough thing to go through wishing everyone well

Alberta56 profile image
Alberta56

I've never had a really serious long drawn out illness to contend with, but I know a common or garden exacerbation can make you feel as if it's going to last for ever. Best wishes.

gingermusic profile image
gingermusic

I had this happen to me about 3 years ago now and like you was forever thinking it was going to happen again but I think as time passes you begin to think of it less and less. Just take things easy eat well and I am sure you will be fine. I wish you all the best,

Pasta247 profile image
Pasta247 in reply togingermusic

Thank you for your reply I’m keeping my 🤞that in time it will get better I should if had a follow up with respiratory 6 weeks after discharge it’s been 6 months now so I’m going to chase them up tomorrow. Enjoy your Sunday

gingermusic profile image
gingermusic

Yes do chase them up you should have had a follow up. Enjoy your Sunday too

Nula2 profile image
Nula2

Just wanted to say I hope you're feeling a lot better soon. Take care xxxx

fancy1872 profile image
fancy1872

Hi Pasta247, I dont post much but read every day here. I understand completely your anxiety. I have severe emphysema and suffer many partial/small/tiny pneumothorax and I know the pain which I now dont go to hospital with to check as the treatment is treat any infection which I can do at home, or, very important, rest, rest, rest and more rest. I had a flare up last week and was in hospital again for 6 days , this time with pneumonia which was the most unwell I have ever felt. It was even worse than the full lung collapse I had in 2015 which required an operation after 4 weeks to clear the infection first.I can only tell you what my consultant then told me on discharge, dont take this as medical advice, just my experience. He said I was now just like any other person who had functioning lungs, but still had to take things easy for a while. My flare ups and exacerbations are self inflicted because I continue to smoke much to my own disgust and contempt. Not just folk like us with lung conditions, most folk need to unlearn all the bad habits picked up since childhood, like dont stretch to get things, slide things along worktops and dont lift, sit to do jobs like ironing and washing dishes. Have everything around you for bathing or showering and dont bend any time unless you really have to. Get up from sitting slowly and do anything slowly, dont rush. Breathing exercises for anxiety are very similar as for COPD, IMHO, so try these. Many videos on you tube and also online NHS or Asthma and Lung UK website. Good luck, try not overthink. Go to GP or nurse if only for some reassurance.

Hope I havent said anything wrong.

Ern007 profile image
Ern007

I have a cancer and I had a nuclear scan ordered from my GP, because of a constant pain under my right ribs. Scan showed negative but something causing that pain and I just have not been back over that, it bothers me then I forget,

Germantara profile image
Germantara

Sorry to hear you're feeling like that when you have something on you're mind it's hard to get rid off it I hope you're worry off you're issue get easier and become the past

Pasta247 profile image
Pasta247 in reply toGermantara

I hope so to thank you for your reply

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