NACSYS

[Welshcorgi]

ANYONE ON NACSYS. HOW LONG DID IT TAKE TO WORK. BEEN ON IT 2 WEEKS DONE NOTHING FOR ME YET.THANKS COLIN.

[Lol1944]

not quite sure what you are expecting. I use it as a replacement for my prescribed carbocisteine for holidays . Reason is one x600mg daily so saves taking dozens of capsules. do find it as good as carbocisteine for keeping the phlegm thin enough to cough up easily

[Welshcorgi in reply to Lol1944]

Been on carbo for years I didnt think it helped so the asthma nurse changed it to nacsys 2 weeks ago but I havent seen any improvement. Thanks Colin.

[peege in reply to Welshcorgi]

What does the leaflet that comes with the NAC say about it?

[B0xermad]

Hi I have been on it 2yrs and it took 2days to notice the difference as I have 1 x effervescent tablet in water then wait 10 mins and use my acapella device to do clearance and I am great most of the day.on carbocysteine I had a big dip in the middle of the day with tiredness and took 3 tablets a day. medication is different suitability for others .

[Welshcorgi in reply to B0xermad]

Been on it over 2 weeks but I find the sputum very sticky. I asked the asthma nurse she said give it at least a month. I have been asking for a nebuliser but they are not very keen on giving me one. They say it causes infection. Have you got one? Colin.

[B0xermad in reply to Welshcorgi]

Hi no I haven't due to having bronchiectasis I am susceptible to infection. I do drink 2 litres of water a day to keep mucus looser

[Welshcorgi in reply to B0xermad]

Do you find the water helps. Nurse keeps telling me I need more water but I find it difficult cant eat at the best of times if I drink lot of water I'm bloated. Colin.

[B0xermad in reply to Welshcorgi]

Definitely helps I keep a bottle and sip it throughout the day so that you don't get bloated drinking a lot in one go

[Germantara]

Sorry can't help you I'm on carberstien I'm sure you get some peaple with more knowledge about you're issue this is a good site for suggestions and experiences

[panthor]

I tried NACSYS & carbocisteine and they didn't work for me, In fact the Carbocisteine actually dried my sputum up! The respiratory consultant & nurse told me they don't always work for everyone. I was advised to try each one for a month. Hope this helps.

[Welshcorgi in reply to panthor]

So what are you on now?.Colin.

[panthor]

It's hard going. I'm not on anything to thin the mucus at all. I drink plenty of water, exercise and do regular airway cleasance best I can. I've had lots of chest infections/bugs over the last 2 years and after each 2 week course of antibiotics seem to get sputum up, I have been prescribed daily doxycycline over the last 3 months and now I've just stopped that and now started Azithromycin 3 times a week as a prophylactic to trial.

[peege in reply to panthor]

Good luck, hope it all works out . You must have had a very stubborn bug, do you know what it was panthor?

[panthor]

Yeah, the stubborn bugs that keep reoccuring are Staphylococcus aureus, Haemophilus influenzae and some types of coliforms from what I'm told. It seems like a repetitive cycle of antibiotics, then within a couple of weeks the sputum changes and here we go again! Hopefully, should start settling down now I've started the regular Azithromycin. Fingers crossed 🤞

[peege in reply to panthor]

I don't know about Staph but I believe lungs can be colonised with the haemophilia Influenzae and can be controlled rather than eradicated. I may be wrong, I remember reading it on here.

If you write those two bugs separately in the search bar above (&/or on NHS website ) you'll find out more about them, which abs work and how to keep them at bay - particularly on NHS website.

[Teach66 in reply to panthor]

Hi Panthor,

Just been reading your posts re. Mucous clearance and your condition, etc. How did you get on with the azithromycin and nacsys after?

Regards.

[panthor in reply to Teach66]

Hi Teach66,

I've been a lot better with fewer infections since starting Azithromycin and NACYS. I do end up with thicker and stickier sputum over time when leading to infection. However, overall a lot better and a big difference.

When I do switch to Doxycycline to fight infections I get a lot of the old symptoms back towards the end of the course that disappear when I start back on Azithromycin. It's all very strange but I suppose that is life with lung disease.

[Teach66 in reply to panthor]

Thanks for your reply panthor

That's good news that the azithromycin seems to be working for you and that you are having less infections.

Yes, I suppose you're right - living with a lung disease definitely has its down sides 🥴.

All the best.

[alcgb]

Hi, I’ve been on Nacsys for two months now. My consultant told me that it takes a couple of months for it to be really effective and that, after a couple of months, it will also be reducing inflammation in the airways. I still have to drink a lot of water to be able to bring anything up. I use a flutter & Aerobika device. I have a combination of bronchiectasis, asthma, mild emphysema & ABPA. Carbocisteine didn’t do anything for me, that’s why they changed it.