Good evening!
Can I ask, if all of the members here have their doctor who specializes in bronchiectasis? Thank you. I hope I get tips for you as my doctor is a polmunologist. I think its hard to acquire bronch specialist here in the Philippines. Thank you.
I have a consultant who specialises in bronchiectasis. I'm in the UK.
Welcome to the site, iamgg. Sorry I can't help you, but there are several members here with a lot of experience with bronchiectasis, and one should be along soon. In the meantime, you can use the search box to look for previous posts about your condition.
Wishing you all the best.
Hello iamgg,I have two regular pulmonologists at the local small hospital, and they were the ones who diagnosed the bronchiectasis, and did the paperwork for nebuliser at home and respiratory physiotherapy. I read many forum members insist on being referred to a bronch specialist, but in my case IAM happy like this.
Good luck!
my main respiratory doctor specialises in vasculitis which I also have. He looks after me in general but if I need extra help like iv antibiotics he asks a specialist at my local hospital to help out. He does so with a fantastic team of specialist nurses. I think you may need to ensure you know about Bronchiectasis yourself and remind your doc if he gets it wrong. Ie two weeks of antibiotics.
It's a good idea to read back posts with their replies o here as Ergendl suggest, you'll find lots of tips and experience of bronchiectasis patients. Just write bronchiectasis in the search bar above. I understand that knowledge it the key to keeping well as well as lung clearance. Good luck, Peege
I've had two or three, That's because they could not make their minds up, so, they called it lung disease.
Now I have Emphysema and other lung things going on, but seems their undecided and test me all the blooming time.
If my arms fall to the ground, they`ll debate and scratch their heads and no doubt all will say AGH! Its lung disease instead!!!
There is Bronchiectasis Support site on this website as well
i was diagnosed by a general respiratory consultant, who was very knowledgeable about bronc. She referred me to the local nursing team, but I haven't seen much of anybody since lockdown. I'm reasonably healthy and they are overworked.
Diagnosed in 1966. I do not think any progress since then. Managed with careful lifestyle and antibiotics when cold coming on. Fortunate to have providers who know disease and accommodate when needed. I am 77 now and antibiotics are a daily part of my life. Have FSH muscular dystrophy as well as bi lat diaphragm paralysis. Nebulize as needed. Saline and albuterol. Rest and no limits. Do not be afraid to speak regarding anti biotics. Has worked very well for me . As has bi pap. Good Luck.
It's frustrating when absolutely no progress seems to be made in treating our various ailments. There does seem to be some movement on the bronchiectasis front at last, but heart research has leapt ahead, while lung research has moved so slowly. And don't get me started on MS. Good luck to you too.
I meant know your limits. You
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