my journey

[LJR21]

I have had severe asthma for many years. Since Nov I have had repeated lung infections. Now having tests for Bronchietasis. I take 3 inhalers , montalukas and fexofenadine but this isn’t controlling it now. Just been put on carbocisteine to help clear my lungs. Hoping things improve and I get to the cause of this three month flare up. Being part of a community who understands the daily struggle will be very helpful.

[Morrison10]

Hi and welcome. I’ve been on this forum for several years, find it helpful. I was born with rare condition PCD, and have bronchiectasis as well as sinusitis etc. I take 4 carbocisteine daily, use an inhaler for hour twice daily, and use spirometer and Aerobika. I’m also on 1 daily 250 Azithromycin. I’m pleased that they keep me active although don’t go out often. Jean

[Patk1]

Have u put mucous samples in for testing?carbocysteine thins the mucous,to make it easier to get up.u can read up on lung clearance techniques.a ct scan should confirm bronchiectasis or not.its b bad winter for coughs lingering,even in healthy lungs,for 3+mths.if u get the mucous up,it shld help ease cough.id start with am+ pm more often if needed

[LJR21 in reply to Patk1]

Thank you for your replies. I have a sample in and a CT booked. I am hoping it’s just the winter flu virus lingering longer than normal. My asthma is generally controlled on the meds I was on.

[Lizzab]

Which inhalers are you on?Nothing changed for me buntil the right inhaler was found, which are Alvesco and Atimos. Atimos was the big change.

[Biker88]

have you been tested for a fungal infection specifically Aspergillosis, this condition makes asthma symptoms worse and is not improved with antibiotics. Diagnosis by X-ray, CT scan, broncoscopy and specialist blood test, Aspergillosis.org for lots of good info.

[GintyFerguson]

Welcome , I had similar journey but asthma not severe. Now on Fostair and Incruse. Avoid small children if poss and take immune boosting supplements. Keep well hydrated , eat and sleep well. Bronchiectasis is not a death sentence and can be managed but you have to look after yourself. Wear a mask in public if you can stand it. Good luck!

[MyMystery]

I have been on carbosisteine for some years and cannot in all honesty say whether they have helped or not! I may find out if I stopped taking them, but have been told not to stop. I have had no problem with them taking them either either