Mycophenolate & nausea

[Nicolefre]

Hi i take Mycophenolate along with other things for hypersensitivity pneumonitis they increased my dose to 750mg twice per day around 3 weeks ago but i can’t cope with the nausea 🤢does anybody take this and have any tips before i give up with them? or is there an alternative medication? my consultant is wanting to get me up to the maximum dose after my next bloods but i just feel they’ve totally wiped me out

[Millyboo710]

I’m sorry you are struggling. I am on 1000mg twice a day and haven’t had any nausea. Are you remembering to take them after you have eaten? Have you spoken to your consultant? Good luck

[Izb1]

I can't offer any advise but wanted to send my best wishes and hope you can find a way to tolerate the increased dose x

[BrigidsFire]

I’m now on 1,500 mg twice a day, but I’ve found that every time they’ve upped my dose I’ve had either nausea, vomiting or diarrhoea as a side effect. It takes me a few weeks for it to settle down. I’d let your doctor know, but give it a couple more weeks to see if it goes away. If it doesn’t it might be a specific brand that makes you feel bad, or they might have to try you on a different medication.

It is exhausting being ill all the time. I hope it settles for you soon.

[Magart]

Hi

I would say take with food eat a little bit of food take your tablet then eat the rest of you food this helped me good luck give it time

[Ria54]

Hi. I had the same issue at the start but I do the opposite to a lot of people and now take it at least an hour after food and don’t eat for roughly an hour after it and I have not had any problems since. I am on 1,000mg twice a day. Hope this helps and you get it sorted x

[horseygirl_0103]

I take it twice a day now I used to take 3x500mg twice a day but now its only 2 x 500mg twice a day

Ive had no nausea at all even when i first started taking it Perhaps youre allergic to it & its not the medication for you. MAke an appointment with your GP & see what he says

[R0B1]

Hi Nicolefre

i take 1000mg twice a day for the same condition and have been for 5 years now i do rember at the start i was the same for a couple of weeks but i found if i took them after my meals if helped, i was prescribed another drug for the nausea one to be taken in the mornings but i rarely use them now. you should ask your gp to give you something to help.

[Boobear30]

Hi there, I've been on mycophenolate aka Cellcept for 5 years. 1000 mg twice a day. I have never been nauseous from it, however I had a double lung transplant 3 months ago and now all of my new meds ie anti rejection meds make me very sick, nauseous, vomiting and horrible diahrea. I have started on gravol and pesto but still terrible. I will be seeing my transplant physician tomorrow. I believe he will b prescribing something. I will let you know what it is and maybe u can ask your physician. I live in Canada but will ask the name it might b under in the UK. In the meantime my dr said pesto and gravol will not harm.Good luck. Ill b in touch if I get something new. Its horrible going thru this. Im ecstatic about my new lungs.

I had a lung disease called non specific interstitial pneumonitis or u can also find it under NSIP Take care.

[Anemone1905]

Hi Nicolefre, my pulmonologist wants me to start on mycophenolate 1x500 mg twice a day for 2 to 3 weeks - increasing to 2 x 500 mg twice a day. I have the same lung disease as you and are on prednisolone since my diagnose in February 2020. I have had no sideeffects on prednisolone. Now I am very worried about the common sideeffects of mycophenolate (diarrhea, vomiting, stomach cramps, the risk of liver inflamaton etc). I am working full time and are also worried that I will not be able to take care of my work. How are you doing now? Are you still on mycophenolate and are you able to take care of your job and other commitments? hope that you are doing well - best wishes