Lung Conditions Community Forum

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Sara_2611 profile image
38 Replies

Hi everyone

I'm back in hospital for the 5th time Oxygen levels went dangerously low to 44 at home at 6am yesterdauy

I managed to eat brekky & take my morning tabs before being carted off by my dad

Usual procedures happened when i got there like wait in reception to get signed in have a cannula put in wait for ages in A E for hours & hours til finally i was taken to assessment ward which I like there cos it's a room on my own which I prefer cos I'm clinically vulnerable. Unfortunatly it's only a short stay until they move me into a main ward with people in the same situation as me

38 Replies
sassy59 profile image

Bless you Sara, hope you’ll be well cared for and soon home again. Thinking of you. Xx❤️

Sara_2611 profile image
Sara_2611 in reply to sassy59

Ta I know Sometimes like today a nurse from the chest clinic representing my main doctor came in for a chat Possibly getting a scan today I don't know

peege profile image

Thinking of you Sara, you're now in the best place. P

Sara_2611 profile image
Sara_2611 in reply to peege


Bevvy profile image

Hope you’re feeling much better soon and your stay is a short one. Do they know why you keep getting these episodes of such low oxygen levels? Are there any treatments that could prevent or lessen the episodes? It must be very stressful not knowing when this might occur, and am sure stress won’t help the situation.

Sara_2611 profile image
Sara_2611 in reply to Bevvy

I think it's just the nature of my Interstitial Lung Disease one of the doctors told me when she came to see me while I'm in assessment unit that I might have a viral infection as opposed to a bacterial one which is strange because when I was in A & E everyone who was listening to my chest never mentioned it but one referred to some bibasery crackles but I don't think they're the cause of it. I'm being assessed for oxygen at home I failed on this occasion to keep the time line in between episodes a long one. It was either may or June when I didn't have one at all I can't remember

Damon1864 profile image

Sorry to hear that you are back in hospital, I hope you get well soon and take care try to have a good day and take care 😊 Bernadette and Jack 🐕 xxxxxx 🌻🌻

Sara_2611 profile image
Sara_2611 in reply to Damon1864

Cheers I'm in ward D6. It's not adsement unit or respiratory. I don't know what it is I'm 100% sure it's not a covid ward

There's a nice girl next to me called Jen

There was a lot of heavy footsteps thundering round the corridors in the ward so don't know if there was an emergency in the night or what

Morrison10 profile image

So sorry you’re back in hospital, hope they sort you out well so you can get home, particularly as you’re highly vulnerable and in general ward. Best wishes, Jean xxx

Alberta56 profile image

Poor old you. I hope this time they can come up with some positive suggestions to stop this from happening. Look after yourself as best you can in there. xxx

Sara_2611 profile image
Sara_2611 in reply to Alberta56

Thanking you kindly take care

Cloudancer profile image

Hope that you feel better soon

Sara_2611 profile image
Sara_2611 in reply to Cloudancer

Thanks a lot

Wonderboy6 profile image

Bless you, Sara,get well 🙏 very soon, all the luck in the world 🌎

Sara_2611 profile image
Sara_2611 in reply to Wonderboy6

Aww thanks a lot

MoyB profile image

Sending you virtual hugs ((((( ❤️ ))))) and hope things soon improve for you. xx Moy

Sara_2611 profile image
Sara_2611 in reply to MoyB

Aww cheers

Ergendl profile image

Oh dear! Do you get extra privileges for being a regular customer :) . Hope you get well soon.

Sara_2611 profile image
Sara_2611 in reply to Ergendl

I wish lol yes I ll do my best to take care

mylungshateme profile image

Hope you have a positive experience in hospital and hope as others have said they can give some clearer insight into sats dropping and maybe manage it better for you and ease your stress and anxiety around the next episode.

Sara_2611 profile image
Sara_2611 in reply to mylungshateme

Much appreciated

Karenanne61 profile image

I hope you make a speedy recovery.🌷

Sara_2611 profile image
Sara_2611 in reply to Karenanne61

Cheers Karen I wish it would all go forever but unfortunately it's one of those conditions that once you're diagnosed it's forever & only to be managed best you can

I will do my very best

Much obliged

Karenanne61 profile image
Karenanne61 in reply to Sara_2611

I understand. I hope things can be brought under control, as best as they can be, and you'll be home soon.

Sara_2611 profile image
Sara_2611 in reply to Karenanne61

Absolutely I ll do my very best I'm getting regular injections in my stomach. Thankfully I have such a thick spare tyre of fat around me I pinch a very large portion of it to lessen pain lol Hopefully when they see fit to gradually reduce my oxygen & done whatever scans are required & if they are satisfied I can breathe on my own sometime down the line hopefully I can go home

Walkwalkwalk profile image

Hi. Sara I hope that you are able to manage this better when your home oxygen is assessed and in place. It will be good to feel more in control of what is happening and hopefully stay out of hospital. Grace

Sara_2611 profile image
Sara_2611 in reply to Walkwalkwalk

Thanks Oh I hope so Li never saw this condition coming my way around 2010 which are the days I used to go the gym

It's still very scary

Bingo88 profile image

Hope you can get some better treatment to help you more with your breathing and your home again soon. Take care Brian

Sara_2611 profile image
Sara_2611 in reply to Bingo88

Yes I hope so I'm going to be assessed for having oxygen at home

Stratos20 profile image

Aww Sara what a bummer. Hopefully you’ll soon be well enough to go home. Fingers crossed for you 🤞🏼

Sara_2611 profile image

Cheers I hope sooner rather than later OF course its down to the appropriate doctors to make that decision so going with the flow

They've got a TV with costs for various packages

Thinkhealthy profile image

Hope they look after you well and you are back home soon. Best wishes x

wheezybronch profile image

Hi Sara, sorry for your problems. I have several respiratory problems, as I understand it, anything under 88% is very urgent and means a trip to A+E. Someone with ILD, with a reading of 67% would be blue and approaching death. If I get a reading below 89%, for several days, I know that I am in serious trouble and need to be seen urgently. Or is this a different measure? I am just worried that someone with a reading of 87% sats may think they are OK if they see yours at 44%. See this link;

I do hope you get better soon, and return home, good luck.

watergazer profile image

Hope you’re feeling better now xx

Hobbledehoy profile image

Och, dear love you…. I do hope they reach a definite diagnosis and can treat it. All the best, honey. 😊 🍀 💕

Sara_2611 profile image
Sara_2611 in reply to Hobbledehoy

Thanks It's what is known as Interstitial Lung disease which is like a scarring of tissue (I think) "

This makes me short of breath & because oxygen isn't getting anywhere near my heart to pumb round my body it's making my levels drop dangerously

Burbagegran profile image

Sorry to hear you're in hospital. I hope you feel better soon and they can help you with your ongoing issues. All the best, Joan x

Sara_2611 profile image
Sara_2611 in reply to Burbagegran


At least this time I didn't faint like last time

My job although I failed this time is to keep the periods of time in between episodes as long as possible

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