Considering pf trails ?

[Dion50]

Hi guys since I am in later stages of pulmonary fibrosis 46pc I realise it could be a lot worse,I'm wondering of anyone has had or considered pf trails I'm seriously thinking about this now as i have nothing to loose ,anyone else input would be grateful 🙏 thankyou all

[Ergendl]

Big virtual ((((hugs)))).

Someone I know joined a trial for a different medical treatment. The novel treatment has transformed his condition which otherwise would have caused him serious problems.

I would join a trial in your situation: you get the best of medical treatment and support, the knowledge that you are using your situation to further medical research, and the possibility of an improvement of some kind.

Wishing you all the best as you make your decision.

[Izb1 in reply to Ergendl]

Totally agree with your comments Ergendl getting the best of treatment and support are the best reasons for joining a trial x

[lovejoyliz]

Hi Dion50

I have not even heard about pf trials or which hospitals are carrying them out.

l do not see any reason why you should not go for it and would say that you should talk to any hospital that is carrying out that type of treatment.

Take care and l wish you every success in moving forward with your health.

Blessings

Lovejoyliz

[Dion50 in reply to lovejoyliz]

Thankyou x

[Dedalus]

Investigate any trials first so that you're better informed as to whether any suit you and then make a decision (some aren't suitable or available for everyone). All best wishes and good luck going forward.

[Schmu]

I always ask my pulomologist before I participate in any clinical trials. It helps me make an informed decision.

[kenbren]

I have IPF, not heard about any trial but will certainly mention it to my Consultant next month I would participate in any trial that may be of benefit, anything that may improve my way of life I would certainly go for Take care, Blessings

[Dion50]

Hi I spoke to my consultant from Leeds but because I had covid at the time I did ask him is there a trail o can do he said well let's gets covid out of the way and then we'll look into it ,he said there is medication but it won't make me feel any better by that I'm presuming that it would be to prolong my situation we'll to be honest I don't no if that's what I want ,there was no mention of med names I really wasn't up for talking but hopefully il know more in March.👍