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Appointment at hospital

Kimlu profile image
26 Replies

Hi Lung Buddies, got a letter with an appointment for Papworth on 11th November. All the pallava of my recet hospital stay, Papworth say they haven't been told anything about it. Surely hospitals share patients info? I have to go as an out-patient to have tests and xray. Hopefully they won't take my oxygen away! I'm doing my usual 'panic' thing about the walk test already lol. How do others manage it? Hugs my lovelies, Penny xxxxx

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Kimlu profile image
Kimlu
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26 Replies
Damon1864 profile image
Damon1864Volunteer

Hi Kimlu, don't panic you can only do what you are capable of doing, I'm sure you will be fine. Please let us know how you get on and good luck. Will be thinking of you. Have a good night and take care 😊 Bernadette and Jack 🐕 xxxxxx

Kimlu profile image
Kimlu in reply toDamon1864

Thankyou, always been a worrier! Hope you are both OK and taking good care of yourselves 😄 xxx

sassy59 profile image
sassy59

I’m hoping all goes well for you on the 11th Penny and I’m sending lots of positive vibes your way. Hospitals should talk to each other but sadly don’t. Take care xxxx

Kimlu profile image
Kimlu in reply tosassy59

Many thanks - just seems odd to me. Take care xxx

CDPO16 profile image
CDPO16

HI Penny. I always find that the anticipation and pre appointment anxiety/panic is always worse than the actual event. I hope that you will find it to be the same for you. As for the walk test, do your best but remember to go at what is a slow comfortable pace for you.Good luck and let us know how you get on. Carole xx

Kimlu profile image
Kimlu in reply toCDPO16

Thankyou Carole, very good advice xxx

Caspiana profile image
Caspiana

Hi Penny, 😊

I never sleep before appointments. I know how you feel. Please let us know how it goes. We are all thinking of you. xx ☕🍰

Alberta56 profile image
Alberta56

Best of luck with the appointment. Try not to worry about the walk test- it's only for assessment, same as when the optician tests your eyes. Are you worried that it's going to say that you've got worse; that's what would worry me.💓💓💓xxx

HungryHufflepuff profile image
HungryHufflepuff

Wishing you all the best for your appointment. I always worry about everything so I won’t tell you not too, even though worrying is pointless and helps nothing. I guess we can’t help worrying. I try not to and sometimes that works, sometimes it doesn’t. Hospitals don’t talk to each other and it seems different departments within a hospital don’t always communicate. 🤷‍♀️

Izb1 profile image
Izb1

Good luck with your appointment. I hope you manage to not worry too much x

Dedalus profile image
Dedalus

Good luck for your appointment - they are usually nowhere near as bad as we believe they will be - but most of us do still get anxious about them. If you need oxygen for your walk test they won't take it away x

Mooka profile image
Mooka

I’m treated at addenbrookes (part of the same trust as Papworth) and they can’t even communicate with my GP properly as it a different health trust. Please don’t worry Papworth has an excellent reputation and I’m sure they will look after you very well. 🤗🤗

Snackjack profile image
Snackjack

Like you I thought Hospitals shared records but when I recently had a telephone appointment with a Cardiologist, my breathing issues are caused by my heart, I informed him that I had breathing tests done at Papworth and he asked my permission to request my records from Papworth which surprised me as I was under the impression that our records were accessible between hospitals. As for the walking test I usually just do the best that I can, 3 years ago I could just about keep up the pace with the beep but the last time I just couldn't. Try not to panic and just do the best you are comfortable with. xx

HollyBoyd profile image
HollyBoyd

Hi Penny. I'm sure all will be okay with your appointment and no, they won't take your oxygen away. Wishing you all the best for the 11th. Take care xxx😊

Oshgosh profile image
Oshgosh

You have to bear in mind that the walk test is t actually a test,it’s just to Assess what you can do.if you struggle with the walk test,just say so.

I’m a worrier,but try to be chilled. Imtrying to occupy myself I have cataract surgery tomorrow. I’ve to be there for 12.30.

Then it depends where I am on the list.

I’ve resigned myself to being last on the list.as I struggle to read a book I .won’t be able to distract myself.

Sorry to moan about me take care xx

Jaybird19 profile image
Jaybird19 in reply toOshgosh

Good luck for tomorrow . I didn't f nd it a problem at all and when you open your eyes after a night s sleep it is amazing . The colours over whelmed me . And if the other eye need's doing too then swap from eye to eye. And back again,. Magic. Nothing is the colour you had thought it was. My new brown fleece was purple!

Oshgosh profile image
Oshgosh in reply toJaybird19

That’s amazing,about your fleece I meanIt makes sense.

Last year,I was trying to claim my black coat from a cloak room.

Discovered it was black.

The other one will be done when they send for me x

Jaybird19 profile image
Jaybird19 in reply toOshgosh

It's like using a yellow filter on a camera . Shows up clouds in sky . So I used to choose I wanted a blue sky or a sky with some clouds. I think the cataract must absorb the some colour or just add yellow, ? . But mine were really bad cataracts and lost my stereo vision somehow .

Let me know what it you find tomorrow .

Jaybird19 profile image
Jaybird19

All the best for 11th . Not long to wait

wheezybronch profile image
wheezybronch

I have been a bronchiectasis patient at the Lung Defence Papworth since 2003, I also attend the sleep centre and had an ablation there approx eight years ago, no problems there. Hospitals do not routinely share information. NHS tried a system where your record is centralized but, it failed miserably, costing them billions. Papworth is very good at what they do, why are you worried about your walking test? The idea is to assess your needs, so just do what you do, they will study the figures, Papworth always have team meetings and, they will put their heads together to get the best outcome for you, I wish you the very best.

PS I am booked in as an inpatient for a two-week course of IV antibiotics, but do not know when they will have a bed.

Kimlu profile image
Kimlu in reply towheezybronch

Thankyou wheezybronch, they are a very good hospital I know. I have a problem with not only breathlessness but sky-rocketing heart-rate which was picked up by my local hospital last month and my local respiratory team. Good luck with your appointment x

wheezybronch profile image
wheezybronch in reply toKimlu

I had a known problem with fast heart rate, a DX of SVT, then AF combined with a pulse of 308bpm, worrying and stressing will definitely not help a fast heart rate and, may be the cause of it. Try to do some deep breathing or some relaxation technique. I know it is easy to say not to worry, but it is quite hard not to, keep smiling, I might even see you there!

Kimlu profile image
Kimlu in reply towheezybronch

Wouldn't that be a laugh! 😀

wheezybronch profile image
wheezybronch in reply toKimlu

Yes, it would. Keep well.

HighGables profile image
HighGables

When I used to do my 6 minute walk test at Harefield the physio walked with me carrying my oxygen 😊🐶Jax

Kimlu profile image
Kimlu in reply toHighGables

Aw isn't that nice? Sounds like a lovely person x

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