Micro nodularity is this common

[Bexxxxxx]

Hi guys I’ve just had Micro Nodularity added to my emphysema and Bronchiectasis diagnosis’s (last year originally diagnosed) is this something many of you guys have experienced I am becoming less well over time too, I’m struggling if I’m honest I did not imagine this for my early 40’s I have a 2 year old grandson that needs me as well as my daughter who had him at a very young age them two are my joy! so I’m needed to be well and active but I am not able to be there as I should be, this is so difficult to keep positive and I googled and I just worry more, I’ve only had phone consultations because of COVID so I’m turning to here as I feel I need to speak to those experiencing or experienced similar or can suggest something ........ sorry just a bad day

[Hidden]

Sorry for your recent diagnosis.

Regarding any googling of condition be sure to be precise, name disease, stipulate lung or liver, followed by nhs uk.

For all lung related also go to blf.org to search and give the helpline a call.

As nodularity diagnosis is recent chat again with respiratory team at the hospital or the doctor who gave you this recent diagnosis. Find out from the medical professionals if there is anything you can do to help maintain and improve quality of life.

Hope today is a better day for you.

Best wishes BK

[Katinka46]

Hello BexxWelcome to this forum. I assume that a scan has shown the nodules in your lungs? There are members here with similar conditions who will offer help and advice. It is a very friendly, supportive forum. I do appreciate that this is a distressing diagnosis on top of your other lung problems. It is made more difficult by not having face-to-face appointments. That will change over the next few months.

Love the picture of your grandson.

All the best

Kate x

[sassy59]

Hello Bexxxxxx, I’m hoping you get some replies from others very soon. It all sounds very stressful for you and I can only imagine how worried you are.

Your grandson and daughter bring you such joy and that’s something wonderful to hold on to. Take care xxxx

[Izb1]

Hi Be and welcome to the site. I cant offer any advice on this as I havent heard of micro nodularity, I am sure there will be plenty on site who have dealt with this. Love the photo x

[Pippydo]

Morning, can’t advise on your condition but well bad days I’m sure we all have them. I struggle with being on pred and it’s accompanying insomnia and ever present heartburn that gets me down, some days harder than others so I do feel for you. I take my dog out on long walks in the countryside and it definitely helps my mood. Wishing you well.

[Kristicats]

Hi Bex The best person to explain the additional diagnosis is the consultant who interpreted your last scan. Many times have physicians written something on a patients notes that have been totally misinterpreted by the patient and GP or a term used needlessly.

Please contact the consultants secretary and explain that you would like the diagnosis ‘ Micro Nodularity’ explaining in relation to YOUR lungs. ( in laymen’s terms)

This term is so vague and could be used in a vast amount of cases.

🤞

[Karenanne61]

Hi. I don't know if it's similar but I have nodules on my lungs. I was having annual ct scans to keep an eye on everything. ( I have copd, bronchiectasis, emphysema and asthma too.) As they hadn't changed size the consultant deemed scans unnecessary. I wasn't pleased, but has now decided I do need one which I'm, coincidently, having tomorrow.