COPD or Bronchiectasis Card? - Lung Conditions C...

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COPD or Bronchiectasis Card?

stillmovin profile image
28 Replies

Hi there. Perhaps I haven’t got the correct term for these cards but I am hoping to find out where I could get cards to carry around with me to notify people that I have a lung condition or more specifically, Bronchiectasis?

Does the British Lung Foundation issue these, or any other lung association within the UK?

Thanks for any information.

Stillmovin

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stillmovin profile image
stillmovin
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28 Replies
Troilus profile image
Troilus

I haven’t seen a card as such, but the BLF and asthma U.K. have a badge you can download the says you have a breathing difficulty, but does not name the condition.

My local authority also has a downloadable badge. Maybe yours does too.

stillmovin profile image
stillmovin in reply to Troilus

Thanks for the rapid reply! Ok the badges may be what I can use. I will enquire. Would like something like a card to carry around that’s not huge.

stillmovin profile image
stillmovin in reply to Troilus

I have contacted the British Lung Foundation and a very helpful person there has directed me to a government site where you can download ´Please Give me my Space’ badges or phone images to show.

wxw.gov.uk/government/publications

There are also wristbands to purchase from the BLF shop with COPD Alert on them.

Hope this helps others.

Thanks to BLF Helpline today.

stillmovin profile image
stillmovin in reply to stillmovin

That should of course read www not www!

stillmovin profile image
stillmovin in reply to stillmovin

Oh forget it...!

sassy59 profile image
sassy59

Hi stillmovin, there should be something laminated that people could purchase, a bit like a bus pass. Conditions could be listed for each individual.

How are you keeping? Good to see you. Stay safe. Xxxxx

stillmovin profile image
stillmovin in reply to sassy59

Thanks. I’m not too bad. Was thinking about the list of conditions I’ve accumulated over the past years as I seem to have joined 4 other forums on Health Unlocked !!! Oh dear! Talk about a walking miracle!

Hope you are well x

sassy59 profile image
sassy59 in reply to stillmovin

That seems to be how it goes sometimes though. Hope you intended to join the other groups unlike the obesity forum. Lol.

Pete and I are doing well thank you. Take care xxxx

madonbrew profile image
madonbrew

hiddendisabilitiesstore.com/

I’m not sure if you were meaning like this but these are quite useful if you can’t wear a face mask. They are 50p&about £3p&p

stillmovin profile image
stillmovin in reply to madonbrew

I wasn’t thinking of this but now I see it is an excellent idea and many thanks for sharing it. It will be very useful for a lot of people.

madonbrew profile image
madonbrew in reply to stillmovin

Your welcome! Annoyingly though the actual lanyard was out of stock when I ordered but I got a card. I’ve seen quite a few people wearing them.

stillmovin profile image
stillmovin in reply to madonbrew

I didn’t know this existed before. It would certainly help a lot of those with conditions such as Ehlers Danlos ( I have that too) and mental health conditions too.

madonbrew profile image
madonbrew in reply to stillmovin

My sister who’s a nurse told me about it. It is very useful. To be honest, I prefer to wear a mask...makes me feel safer even though they’re supposed to be to protect others. But it’s good to have if I can breathe and need a break

madonbrew profile image
madonbrew in reply to madonbrew

If I can’t breathe! Lol 😂

Maximonkey profile image
Maximonkey in reply to stillmovin

Hi Stillmovin, I have already bought mine and everyone seems to accept it, so far no-one has challenged me about not wearing a mask so I recommend them. I bought the hidden disability badge, the exempt from wearing a mask badge, the lanyard and the perspex cover all for £6.50. Take care Maximonkey

Maximonkey profile image
Maximonkey in reply to madonbrew

Hi Madonbrew, thanks for pointing this out. I have already bought mine and everyone seems to accept it, so far no-one has challenged me about not wearing a mask so I recommend them. I bought the hidden disability badge, the exempt from wearing a mask badge, the lanyard and the perspex cover all for £6.50. Take care Maximonkey

madonbrew profile image
madonbrew in reply to Maximonkey

Glad you haven’t had anybody being mean!

Take care!

Dee

Maximonkey profile image
Maximonkey in reply to madonbrew

Thanks Dee, Maximonkey

domino21 profile image
domino21

Sunflowers, or you can download and print off the government website

bevanboy profile image
bevanboy

type in hidden disabilities on your computer they will provide you with a card, card holder and a lanyard to put around your neck it will cost you £6. The card states MY HIDDEN DISABILITY MAKES ME EXEMPT FROM WEARING A MASK regards and have a nice day Bevanboy

stillmovin profile image
stillmovin in reply to bevanboy

Thanks for this useful info. I will be wearing a mask but there are others that will find this info really useful. Cheers!

Robin67 profile image
Robin67

I printed mine off the gov website and got a lanyard from tesco with sunflowers on it for hidden disability

Kinnoo09 profile image
Kinnoo09

I wanted to ask the same thing. I have a driving test next week and I don’t want to wear the mask as I suffocate wearing it. Any idea if wearing a badge would be enough?

stillmovin profile image
stillmovin in reply to Kinnoo09

If you have a disability that means you just can’t wear a mask, I would imagine you can explain that to the instructor or examiner that is scheduled to be sitting in the car next to you. I feel that the masks are to protect others that we are near and that is why it’s important to be considerate. This virus is spreading and will be here a while. I feel so uncomfortable being near people not wearing a mask. You would really need to check it out first with the driving school rather than just show up with a badge on the day.

Kinnoo09 profile image
Kinnoo09 in reply to stillmovin

Thank you for explaining. Yes that makes sense. I’ve bronchiolitis.

DeeSending profile image
DeeSending in reply to Kinnoo09

Hello everyone,

My GP has, at my request, prepared a note to say that I have PF and can't wear a mask properly. This note I carry with me at all times. I do, however, wear it over my mouth to enable me to breathe. I want to show that I am complying as best I can with the orders. Here in Melbourne we get a hefty fine for non-compliance. As others on this forums have suggested, download PF data and carry it with you. I also wear a dog tag with my various diseases engraved on the back and a medical alert insignia on the front. This can be purchased on line from many medical websites.

Jardine21359 profile image
Jardine21359

Download from Internet or you can order them online

stillmovin profile image
stillmovin

I am sort of steering the thread back towards my original post as I think people may have understood that I am searching for cards or badges to show that I CANNOT wear a mask due to a hidden disability. That’s not the case. I will most certainly be wearing a mask as I think they are becoming more important as this virus progresses and mutates. It is to protect each other. Those near us when we are out and about.

The info I have picked up here from everyone is great. Lots of us will benefit from it - those who really need others to be wearing masks and keeping a good distance from them ( like me) and those who cannot wear a mask due to hidden disability, and need others not to reprimand them when they are in shops, etc.

Everyone has been so helpful. Thank you.

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