Out of breath

[Pokermon]

Confused as iam only 17. and mum has always taken charge what is best. I read on here about taking excersise I get out of breath just walking up a slop. I recover after stopping a while is it best to keep doing this? Is getting out of breath harming me.

[Adirock]

Hi pokemon, before lockdown I was attending a pulmonary rehabilitation course. Through attending that I learnt that keeping up with exercising was important, I used to push myself to the point of being unable to speak thinking I was making my lungs stronger but was told that I should only go as far as still being able to have a conversation whilst working out. They used to encourage me to use heavier weights the more I progressed or to try to up the pace whilst on the cross trainer but to still be able to hold a conversation comfortable. Hope that helps 🙂 xxx

[Caspiana]

Hello Pokermon , 😁👋

It is normal for us with lung disease to get out of breath, and worse when walking up a slope or stairs because it requires more oxygen that our lungs struggle to provide. Having said that ,exercise is extremely important, lung disease or no lung disease. It helps to circulate blood and improves our respiratory muscles. Even though the huffing and puffing is very off putting. AND 🚶moving around helps us to sleep better. Having said that, suddenly starting aerobics, the tango 💃 or running 🏃 is not the way to go. Start gently and build up bit by bit. When you next see your doctor get advice as to how much and how long you should be exercising daily.

One of the dangers of having lung issues is that there is a tendency to stay away from physical activity because it makes us so very out of breath and tired. But the danger is , the less we exercise, the more we lose muscle mass, and cardiovascular health, the weaker we become. A very vicious circle. This makes it harder and harder to recover when we get ill. I have found that exercise improves my lung function a little and keeps me sane. I tried to exercise all the way up to the day I had my transplant and I'm glad I did, because I had some physical strength my recovery was fairly good. Well, that's what the surgeon said anyway.

I hope you and your mum are doing okay.

Sending best wishes,

Cas xx🌼🍀🌷

[Pokermon in reply to Caspiana]

Thanks its very confusing as only became ill recently so still a learning prosess last reading was 35 lung capacity so I do get tired very quickly hence I use wheelchair to reserve my energy at college. Mum gets me to move around and they recken laughter is the best medicine and that I do ALOT. Lol

[Caspiana in reply to Pokermon]

Good on you Pokermon , and GREAT news that you have stuck to going to college despite your difficulties. What an achievement!! 👏👏👏 What kind of wheelchair is it? I used a wheelchair when I had to walk a long way, but I sat in it when I got tired. I used it to put my bag and shopping on it. I walked as much as I was able before getting into my wheelchair when I knew I had enough. May be you could try that? But don't over do it and know your limits. Again, well done you. xx 👍👑🏆

[Pokermon in reply to Caspiana]

I had a manual one at first but mum got me a electric light weight one for college and it means I can keep up with my friends which is good. When I go shopping or out and about like you I walk till I get tired then use it.

[Caspiana in reply to Pokermon]

Very good ! I'm glad you can get around with your friends easily. You Keep going my young friend. xx 🙋

[wheezyof]

Hello pokermon,

Yes exercise is good for you but as Caspiana says take it steady. I was told if I could say "This exercise is doing me good" while moving about then, if I said it easily I could push a little harder or keep going longer. If I had to catch my breath saying it, then I was doing okay. If I couldn't manage to say the whole thing then I needed to stop. Get my breath and try an easier exercise. To build up slowly.

I do chair exercises. Sitting comfortably and then using my arms or legs. There's some good utube clips.(they are mostly aimed at old people).

[Katinka46]

This is a really tricky (and sensible question) question. I think when you first came on this forum you did not have a diagnosis? Have you got one now? The reason I ask is that different conditions react differently to exercise. I started pulmonary rehabilitation but after ten sessions I had to pull out with the support of the physio who led the sessions. I was not recovering after the sessions and I was just getting worse as the weeks went on. I am sure that this was because I have Pulmonary hypertension. Which is contra-indicated for PR. The more I do the worse I get and I do not recover. But you say that you do recover when you stop? A physio told me not to exceed Borg Scale 5, and the advice about being able to talk while exercising is good.

All the best

Kate xx

[Pokermon in reply to Katinka46]

Hi I have oblititive bronculitus developed it from having Steven Johnson sydrom when I was 14.left me with 25 with a course of treatment oner three months it reached 35. Which it has stayed around the last year.

[Katinka46 in reply to Pokermon]

Thank you for that. Caspiana and I have OB. And there are others here with it.

I am so sorry. But that your lung function has increased 10% sounds like good news. Well done. So follow everything that Cas says. She is our expert on OB. Is Steven Johnson syndrome an autoimmune disease? That would fit as those diseases can cause OB. In Cas's was it was RA, and in other it might be Lupus.

Take care

With love from one of your BLF grannies

Kate xx

[wheezyof in reply to Pokermon]

I'm an OB patient too. Keep within your limits and then add a little more when you can. xxxx

[corriena]

Getting out of breath wont harm you sports people do it all the time. The more you exercise the more you will be able to do it can be scary at times but stop get your breathing under controll and carry on. Making sure you build up slowly and only increas the amount of exercise slowly being guided by your health. Finding something you enjoy doing can help, thear some briliant u-tube exercise vidios aimed at people with lung problems ect worth a look.( And more interesting than emptying the dishwasher 😆) above all just keep moving its good for us 🏃‍♀️🚶‍♀️💃

[Corin1950]

Hi Pokermon

Just been reading your previous posts and must apologise for asking about your name. I had read it as Pokerman and that’s why I queried it. I had visions of you online gambling! But of course you meant Pokemon! Duh!

You’ve had some very good advice on your question of exercise and I’d only like to add that I wondered if you saw the post yesterday of the Qigong exercise. It’s similar to Tai Chi. I did it and really enjoyed it and it’s very gentle and focuses on breathing throughout. Well worth giving it a go and your mum would probably enjoy it too.

Take care and hope the cooking’s going well too.

X

[Pokermon in reply to Corin1950]

Will give it a go thanks take care.

[Corin1950]

Sorry forgot to post the link

youtu.be/BC9MvsxZrW4(Not working as expected?)

X