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Hi left for a while wondering if any emphysema sufferers wants to donate directly to research in that area dknt knos if more funding will push research but just wondering

[powderpuff]

Hi Emily, nice to see you back!

Presumably you mean donating to the BLF? I’m not sure it’s possible to donate for specifics, it’s rather a case of the charity deciding on areas of research they will fund or part fund.

Have you looked on the BLF website? It should tell you there what current & future plans there are.

[Hidden in reply to powderpuff]

No I mean donating directly to research specific to emphysema. Like university of Australia. I want to donate to emphysema research as that my disease

Yes looked on BLF research just wondered if we could and if it would make a difference to finding the treatment to halt emphysema

[powderpuff in reply to Hidden]

I think you would need to make approaches yourself to find out that kind of info.

I have tried to do the same with Crohns & Colitis before & the closest I got was being able to donate to a patients association in my local hospital.

[Hidden in reply to powderpuff]

I have done that waiting for response as I want to know how far they are if donating will help ect. Also want to know how people with emphysema feel about this as dont want to be chasing my tail

[Hacienda]

Hi Hun, Nice to see you back, We didn't forget your Birthday either. xxxx

[Hidden in reply to Hacienda]

😘😘😘 hope you are well always in my thoughts

[Hacienda in reply to Hidden]

Hi Hun, Been Poorly , A Lot better now, had loads of lovely Comments from our Lung Buddies here. Keep on fighting Emily, You are certainly making a stand for all of us, We need a millions . I have collected from our Charity Tin £48.60 for my Breathe Easy Meeting Tomorrow for BLF, not a lot , but it all adds up in the end, this is collected & Counted for each Monthly Meeting. maybe we all should do "Calendars" wearing our cannulas with Oxygen & Nothing else, Just a few Cream Buns. It was done Previously and Just look at the Money Raised. I am not Joking, Put my Name Down, Miss December. xxxxx

[Hidden in reply to Hacienda]

Brilliant and every penny..glad you feeling better swear you inspire me.

Love the calendar idea I wish we was all as creative. No way we are giving up no WAY xxx

[megshafer in reply to Hacienda]

What a most wonderful idea Carolina...we need some PR!! Dont we!!

Take care...

Meg

[Hacienda in reply to megshafer]

Hi Hun, I watched The Film again, "Calendar Girls" recently, Loved it, Thought why can't we Do This for our COPD. I shall put it forward at our Breathe Easy meeting Today, They will all fall Down Laughing, Good medicine to make them Laugh though, I know two of our Men who would Join in, I doubt the ladies would.... Watch this Space. Love n Hugs Meg. XXXX C.

[Hidden in reply to Hacienda]

Go for it

[megshafer in reply to Hacienda]

I think it sounds like just what we need!! Lung diseases need alot of PR and it looks like with everything else money would not hurt...lol

I must go to sleep my dear Carolina....it is early in the morning and I could not put down a new book.A old habit, if the book is good!! Lol...

Take care...."Calendar Girl"...💐💐💝💝

[Hacienda in reply to megshafer]

Sleep Well Meg, Pleasant Dreams. XXX

[megshafer]

Hi Emily61, glad you have returned!! I donate to the researchers directly....Universities...in the pulmonary research area that's what I have been doing. Duke University in Durham, North Carolina, USA, have been working on stem cells for emphysema. I donated to that research.

Take care!! Hope we get a cure, my friend.

Meg

P.S. the British Lung Foundation .....can always use donations for all there work also, they are a nonprofit.

[Hidden in reply to megshafer]

Thought stem cell had stopped tbats positive are they at human trial yet..so much research and little breakthrough. What do you think of the cancer drug potentially halting copd

[megshafer in reply to Hidden]

Yes, I think they have started at Duke University in Durham, North Carolina...for pulmonary fibrosis, emphysema and Cystic Fibrosis and a few other lung diseases. You can Google, Duke University, Stem cells, there are quite a few articles. Mayo Clinic also started a lung regeneration program, that entails many things including stem cells. You can Google Mayo Clinic, Lung Regeneration...you'll find information there, also.

Take care, stay well😊

[Hidden in reply to megshafer]

I will look now

[Hidden in reply to megshafer]

Cant find anything on stem cells Meg I must not be doing it right

[megshafer in reply to Hidden]

Google Duke University, Stem cell research....try that if not I will look it up and send you the heading tomorrow....😊

[Hidden in reply to megshafer]

Have donated to BLF

[megshafer]

Emily, I have not read much on the cancer medication, but I plan on doing so soon. It sounds interesting, but then, I know many people, friends with lung cancer, some still have emphysema, some don't do to surgeries. I sometimes wonders why they can't surgically remove emphysema or most of it, as they do in removing blebs, etc.and, lung reduction surgery also removes some emphysema when making the lungs smaller. That one also makes sense to a few of my Respiratory Therapist friends!!

I have read all night, my friend...(one more chapter) a good book and I can't put it down!! ..so I must go to sleep, I have a bit of a busy on tomorrow.

Have a wonderful Tuesday!!

[Hidden in reply to megshafer]

Ok will look again re stem cell as not sure looking in the right place

[megshafer]

Very good to donate to the British Lung Foundation....they are working very hard. And, need donations!! That's a very good and positive.