Update not good: On the 17th September... - Lung Conditions C...

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Update not good

shangrila27 profile image
30 Replies

On the 17th September my husband had his pre op assessment at Blackpool Victoria,all went well and we waited for transport to Preston,one and three quarter hours.Within 30 minutes of arriving home he had a cardiac arrest in the bathroom,paramedics did CPR and brought him round.Admitted to coronary care in Preston and then Blackpool where a week later he had a second arrest and we were told he only two or three days to live but he surprised everyone and opened his eyes and started talking .His lungs are very bad and because of LTOT he cannot have surgery for his stent also his aortic valve has narrowed and cannot be replaced .He is now back in Preston and nothing more can be done.All the changes have worsened his Alzheimer's and he is very confused.Its happened so quickly and we are all very upset.

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shangrila27
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30 Replies
sassy59 profile image
sassy59

That’s so devastating shangrila and my heart goes out to you and your dear husband. You are in my thoughts. Xxxxx

Gladwyn profile image
Gladwyn in reply tosassy59

That's awful, I'm so very sorry.

skischool profile image
skischool

I do hope that they can make your dear hubby as comfortable as possible given the circumstances and that your family's love and support will help you all during this time.

Ski's and Scruff's x

HungryHufflepuff profile image
HungryHufflepuff

Thinking of you and your husband 💐

Damon1864 profile image
Damon1864Volunteer

How awful for you and your husband, life can be so unfair. Try to stay strong and remember we are here for both of you. Thinking of you love Bernadette xx 😥

ChaOliver profile image
ChaOliver

So sad about your troubles. Much love to help carry your through.

kathbrad3 profile image
kathbrad3

Thinking of you x

watergazer profile image
watergazer

So sad. Thinking of you . Sending hugs x

Derbyram21 profile image
Derbyram21

Thoughts are with you x

shouty profile image
shouty

So sorry to hear this

My Mum is in nursing home & is very ill. She has dementia & is just palliative care now. Sending you some strength xx

Corin1950 profile image
Corin1950

Sending you and your husband my very best wishes at this difficult time.

Take care

Corin

X

CDPO16 profile image
CDPO16

Thinking of you both at this very difficult time xx

shangrila27 profile image
shangrila27 in reply toCDPO16

Thankyou all for your best wishes and concern.On a different tack,I have just contacted Age UKregarding waiting times for attendance allowance and told that on average it is taking 13 weeks,we've waited 7 so far!

CDPO16 profile image
CDPO16 in reply toshangrila27

Unfortunately there is always a wait when claiming a benefit. If approved though the payment will be backdated to the date of the application, but I realise that that is little help at the moment. I hope that you hear something soon.

Sorry things have taken such a bad turn. My heart aches for you both.

Izb1 profile image
Izb1

Thinking of you at this very worrying time x

What a very difficult time for you. My very best wishes.xx

Kristicats profile image
Kristicats

What an absolute awful year you’ve had. Unbelievable rotten luck for your poor hubby. I hope you get plenty of the right support around you at this stressful time and that you all have a quick point of contact person should you need help/ advice re pain/ Alzheimer’s help etc. Im sure Family love will keep you all strong. Take care Cx

SquirrelsHolt profile image
SquirrelsHolt

My thoughts are with you and your family and it's just so sad to imagine what you are going through.🙏x

Aingeful profile image
Aingeful

Sending massive hugs.xxx

Amanda3011 profile image
Amanda3011

So sorry to hear this must be a devastating shock to you all , hope your husband is as comfortable as can be and sending heartfelt best wishes xx

Neville33 profile image
Neville33

🙏💖

Dedalus profile image
Dedalus

Sending best wishes to you both at this difficult time.

Nicholatracy profile image
Nicholatracy

So sorry to read such devastating news. Prayers and strength on its way 🐞

Ergendl profile image
Ergendl

How awful for you both. ((((Hugs)))).

jackdup profile image
jackdup

What awful news, I pray they can make him as comfortable as possible and that he will be at peace.

Ksb6420 profile image
Ksb6420

So sorry for your sad news. Thinking of you and your husband. Sending prays to you both.

Nicholatracy profile image
Nicholatracy

Prayers 🐞

shangrila27 profile image
shangrila27 in reply toNicholatracy

Thankyou all for your kind thoughts and best wishes.They tried to discharge him earlier this week,the OT asked him to walk round the bed and explained the Home First plan.His bed would be kept for two hours while they assessed the situation and installed anything necessary As we don't have two beds downstairs we have delayed the assessment .We are still trying to get a hospital bed on loan.If not successful I am going to try a military charity as my husband served 22 years in the British army.He is very tired but his appetite has improved and I haven't bothered too much about his diet.

skischool profile image
skischool in reply toshangrila27

The hospital discharge team should arrange the delivery of a hospital bed at home before even contemplating discharge,they are also charged with checking the home environment to ensure all his basic needs are in place if that involves home support and liasing with social services..don't accept anything less and you shouldn't need to go to the Army for charity

Please be advised i have been through this all before when my wife was discharged from hospital after a severe stroke and i am speaking with some authority on the matter,don't accept anything less.

Best wishes Ski's and Scruffy x

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