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hope132 profile image
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This post is about me while I wait for my dad to get home.my sister and Mom are freaking out and they don't even realize it's hardest on me cause I have this.i have been doing a hell of a lot of reading.i have yet to go to a pulmonary Dr cause I have no insurance but I am making appointment when I get back

I have no cough,no wherzing,no phlegm .I have read I probably have emphysema.the only symptom with this is shortness of breath my numbers around 15 months ago where mid to upper 60s I want to go to pulmonary Dr to see if they got higher since I quit smoking.i have read tons of things and they all say everyone is different.i have read with alot of hard work and a little luck it is possible to stay were you are or in the general ballpark for all or most of the remainder of your life.i want to do the 6 minute walk test cause I am running now everyday I know I would kill it but I just want to see the proper dr to know exactly what he thinks it's hard no insurance but I'm going only thing worried about is my numbers went down although I read don't focus on numbers they fluctuate it's more based on what you can do.i know I shouldn't obsess with myself might have to figure out how to stop I read emphysema can decline at such a slow pace that you may be able to live a fairly normal life if you work your butt off.am i nuts cause I have read this in several places.

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hope132 profile image
hope132
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5 Replies
sassy59 profile image
sassy59

Keeping taking care of yourself hope, eating well, exercising and try and get to see a pulmonary doctor as soon as you can.

Thinking of you xxxx

2greys profile image
2greys

Life is full of challenges and uncertainties, nobody knows what is waiting for them just around the corner. All we can do is to live for the day, whether it is a good day or one of those bad days. All your fears and worries need to be put to one side, rather than in denial. I have turned down, once again, the opportunity to retire for a lot of reasons; one of them being why not, I am not ready to give in. Yes, it is hard to keep working but I am used to it as my whole life has been hard. My numbers may have fallen a bit mainly due to developing Lung Cancer, but I am also coping a whole lot better now. Diet and exercise to remain fit is the key to successfully taking control of the situation.

All the worrying the world will not help or improve your situation, which you must accept to be able to move forward with your life. You have to be able to cheer up and re-engage with society once more, your life is far from over. I really wish I had your numbers, which are double mine, haha I would be the oldest tearaway going if I did, although I am giving it a good go now. In fact I will be going sailing for a week again in less than 3 weeks time. With the right attitude, you could have a good quality of life as well, just have a little faith in yourself, you can do it if you want to.

We now have a lot more knowledge on how to manage our disease than your father ever did, you cannot and must not make a comparison between you both.

I might sound a bit uncaring about your father, but that is really not the case, as in the title of your post, it is just about you. Strange as it may seem you have to remain strong, for the sake of the rest of your family, to set an example so they can remain strong too, in the shared, sad circumstances.

Caspiana profile image
Caspiana

You are right to want to get a proper diagnosis. In fact it's very important that you do, as we can't diagnose ourselves. You are taking very good care of yourself with your exercise regime. I also hope you manage to get insurance somewhere down the line, so you can see a doctor regularly should the need arises. Take care hope132 . xx

Ergendl profile image
Ergendl

I don't work my butt off to live a healthier lifestyle, but I have included many changes in the way I live which have helped turn around my FEV1 figures. The easiest way to do it is to start making some little changes now. Then when you're comfortable with those and they come more naturally, to add some more. Even one little change today is better than waiting for a tomorrow. Take care.

hope132 profile image
hope132

How much did you raise your Fev number and what did you do.my numbers were done like around 15 months ago they were in the mid to upper 60s I want to get them in the 70s.

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