Thank you

[Mickie67]

Hi everyone it's me again!!

Spoke to the GP I do have idiopathic pulmonary fibrosis how far advance I don't know cause of cancelled appointment GP will phone me on Friday to see how I am if no better I will have to be admitted to hospital!! I am on antibiotics for my chest which finish on Friday. Fingers crossed I don't have to go into hospital

It's been a rollercoaster of emotions today

Feeling scared

Oh Gov web site will send out a covid home test kit just to make sure I don't have covid ( I've no symptoms)

Thank you for your messages your all brilliant on here.

Going to bed now take care look after yourselfs. Michael👍👍😭😭

[sassy59]

Thinking of you Michael and your diagnosis. Hope you don’t have to go into hospital. Fingers crossed you don’t have covid. Take care. Xxx🤗👍

[Hidden]

Thinking of you and wishing you well.

[peege]

So sorry Mickie, no wonder you're scared. Many people with bronchiectasis take long term antibiotics either on 3 days a week over winter as I do or more often and for longer periods. Perhaps speak to your gp or consultant about doing similar for your IPF to avoid exacerbations & infections? Thinking of you xx P

[HungryHufflepuff]

Gosh. Really hoping that you don't have to go to the hospital 🤞 Thinking of you and wishing you all the best.

[Mickie67 in reply to HungryHufflepuff]

🙏🤞🤞🤞🤞

[Oshgosh]

I’m glad you sought help. Hope the antibiotics work.thinking of you.

[Spacecat1]

Look after yourself. Stay safe x

[Oshgosh]

Hi, I take antibiotics all the time to help control my Interstitial lung disease under some sort of control..When you feel a bit better,

It’s all a our staying warm,moving about as much as possible. Eating as healthily as you can..stay safe.

[watergazer]

At least you know what you are dealing with now Michael. Fingers crossed that you don't have Covid 19 and don't have to go to hospital. Wish you well x

[Mickie67 in reply to watergazer]

True. I appreciate your reply happy new year 🎉🎉👍

[Dedalus]

Hope hospitalisation not necessary Michael, and hope IPF not too far advanced (I know nothing about IPF I'm afraid). Wish you well - please keep us updated.

[Mickie67 in reply to Dedalus]

👍👍👍👍👍

[Izb1]

Thinking of you Michael and hope you escape a hospital stay, at least you can now deal with the problem. I dont know enough about IPF to advise you but fingers crossed you are in the early stages and it is mild x

[Mickie67 in reply to Izb1]

Thank you take care👍👍

[Walkwalkwalk]

Michael, I hope that you had a good rest and that your emotional rollercoaster is coasting more smoothly for you. A new diagnosis is a shock with so much of the future in a cloud Learning to be your own advocate will be an ongoing process for you but perhaps start by finding out if the antibiotics you are taking are what is most useful to you and whether your blood or sputum samples have indicated the most effective antibiotic for you at this time. If not, why not?

If you are hospitalised it is the likely process that will be followed but perhaps you can get it started at home. They also will want to check out your Covid status if you are being admitted and I hope that your tests are already negative.

I have been living with IPF for some time ( certainly past the sell by date I was given ) so hang in there for the slowing of the rollercoaster. It’s great when it happens.

Take care. Do ask questions and get answers by let anyone help who can.

[Mickie67 in reply to Walkwalkwalk]

Thank you for your reply I shall definitely ask my gp about the antibiotics though never thought about that I will recieve a call from BLF specialist nurse to go over some understanding of my illness. Happy new year and thanks again. Michael 👍👍👍

[Patk1]

How are u now Mickie67? Hope chat with dr goes well 4u

[Mickie67 in reply to Patk1]

Hi I've spoke to consultant secretary this morning and she is going to get him to call me. That's made me a bit better. GP phoned me this morning im on the right antibiotics for chest infection. Which is feeling better. Thank you for checking in really appreciate it👍👍👍👍

[Patk1 in reply to Mickie67]

Thats good.ru on a 2 week course? Hope u soon get it settled and dont hav to wait long for consultant to ring. I find it helpful to write points u want to discuss so dont forget and have pen+ paper t hand whn he rings.x

[Mickie67 in reply to Patk1]

I have been writing in my online diary. I shall keep all you wonderful people an update.Take care x👍