Spoke to the GP I do have idiopathic pulmonary fibrosis how far advance I don't know cause of cancelled appointment GP will phone me on Friday to see how I am if no better I will have to be admitted to hospital!! I am on antibiotics for my chest which finish on Friday. Fingers crossed I don't have to go into hospital
It's been a rollercoaster of emotions today
Feeling scared
Oh Gov web site will send out a covid home test kit just to make sure I don't have covid ( I've no symptoms)
Thank you for your messages your all brilliant on here.
Going to bed now take care look after yourselfs. Michael👍👍😭😭
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Mickie67
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So sorry Mickie, no wonder you're scared. Many people with bronchiectasis take long term antibiotics either on 3 days a week over winter as I do or more often and for longer periods. Perhaps speak to your gp or consultant about doing similar for your IPF to avoid exacerbations & infections? Thinking of you xx P
At least you know what you are dealing with now Michael. Fingers crossed that you don't have Covid 19 and don't have to go to hospital. Wish you well x
Hope hospitalisation not necessary Michael, and hope IPF not too far advanced (I know nothing about IPF I'm afraid). Wish you well - please keep us updated.
Thinking of you Michael and hope you escape a hospital stay, at least you can now deal with the problem. I dont know enough about IPF to advise you but fingers crossed you are in the early stages and it is mild x
Michael, I hope that you had a good rest and that your emotional rollercoaster is coasting more smoothly for you. A new diagnosis is a shock with so much of the future in a cloud Learning to be your own advocate will be an ongoing process for you but perhaps start by finding out if the antibiotics you are taking are what is most useful to you and whether your blood or sputum samples have indicated the most effective antibiotic for you at this time. If not, why not?
If you are hospitalised it is the likely process that will be followed but perhaps you can get it started at home. They also will want to check out your Covid status if you are being admitted and I hope that your tests are already negative.
I have been living with IPF for some time ( certainly past the sell by date I was given ) so hang in there for the slowing of the rollercoaster. It’s great when it happens.
Take care. Do ask questions and get answers by let anyone help who can.
Thank you for your reply I shall definitely ask my gp about the antibiotics though never thought about that I will recieve a call from BLF specialist nurse to go over some understanding of my illness. Happy new year and thanks again. Michael 👍👍👍
Hi I've spoke to consultant secretary this morning and she is going to get him to call me. That's made me a bit better. GP phoned me this morning im on the right antibiotics for chest infection. Which is feeling better. Thank you for checking in really appreciate it👍👍👍👍
Thats good.ru on a 2 week course? Hope u soon get it settled and dont hav to wait long for consultant to ring. I find it helpful to write points u want to discuss so dont forget and have pen+ paper t hand whn he rings.x
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