Hi, my name is Marie and I work on the helpline as an advisor.
I have a background working in Social Care so I can offer advice on care packages, adaptations in your home and anything else you may need with regards to your personal care needs.
If you find that your condition is affecting you at home or you are struggling with your mobility and want to know what help you can get, please give me a call on 03000 030 555 and I will be happy to have a chat with you.
Thank you and take care.
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Marie__ALUK
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Thank you for sharing this with us, I may give you a call next week as I am fighting to get my taps changed due to rheumatoid arthritis and the housing are being difficult x
I am sorry to hear that you are struggling at the moment but I am here all week if you need to chat to me and I will be happy to help as much as I can.
Thanks for being there MarieBLF. and the support if needed. I am fine at present. Waiting on a visit today from Respiratory team. Think i will need another Spiro test. Because my breathlessness has gone since my pacemaker op. Housing wise we are all on the flat which makes things easier. Have a good weekend BRIAN
Thanks. MarieBLF, Guess i will have to wait for my next Spirometer test. Was diagnosed with copd Fevi1 =39%. But since my Pacemakers been fitted. All signs of Breathlessness have gone. Respiratory just Assessed me at home just by sitting talking to me. No Tests at all. Said i dont need any meds or Neubuliser at all.
Finally someone to listen to us thank you so much I know we ALL APPRECIATE IT. can I ask does it matter where you stay for instance I stay in Glasgow xx
Hi Marie. I've just joined. I was diagnosed with arthritis in 2009, but since then a number of other symptoms have developed. These include pins and needles in my extremities along with breathlessness and a tightness in my chest.
There are so many things going on that it's difficult to see them all as independent of one another. The sensible conclusion is that they're connected.
I'm awaiting scans, tests and other investigations, hopefully to uncover the truth, but I wanted to message you anyway.
I did and an email to you guys earlier, so you may have come across my name already.
I don't know if you are able to help, but I'm hopeful.
Thank you for your message and welcome to our community!
I am sorry to hear you are having a bad time at the moment and you are doing the right thing by reporting it to medical professionals as they can refer you for tests.
In the meantime if your symptoms get worse or change and you can't get through to your GP, you can call 111 for advice.
Hopefully we will reply to your email soon but if you need to speak to us you can call the helpline on 03000 030 555 if you need to.
Hi I cannot seem to get through to the helpline , kinda guessed that you will all be busy , i've just had to quit my job due too the worry about this virus , I have managed to get a sicknote from my doctor , but now need some advice on benefits ?
I am sorry to hear that you are struggling to get through to the helpline, yes we have had a phenomenal amount of calls come through and we are all working from home as per government rules so it's a big change for us.
I will send you a private message to get some more details from you.
Hi, Marie. Hope this message finds you in the good health and your festive break goes well. I have been on helpline with your colleague named Debbie. She is lovely and has put me on the waiting list for a call back from clinical team. So, it is just a waiting game for me at the moment. However, I do need an assessment on equipment to be fitted at home etc. When is it at the earliest date you are available then? Massive heart-felt thanks in advance.
Hı MarieBLF are you giving advices for paitents living outside great Britney.. l am suffering from COPD 4. Th stage and living in Turkey..and wants to know if there are any paitents could be treated and improved to 3. Stage COPD while there where 4. Th stage?
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