Should i start rescue pack

[Vee70]

Hiya folks, after a very sleepless nite increased breathlessness which has got worse over the course of the day. Very tight feeling at back of throat.

I wonder whether to start my predisnolone tabs....i have a spirometry booked for 2wks which would have to be postponed 😩

[CDPO16]

HI,

I looked at your profile and saw that you are recently diagnosed. I understand that it is difficult to know what to do to help oneself at times. I still have that dilemma some days!

Have you got a salbutamol inhaler and is it easing the breathlessness?

On 'bad' days, I often use the salbutamol every 2 to 4 hours until my breathing settles down. My 'yardstick' for starting prednisolone is when the salbutamol has little or no effect and I am still breathless when sitting doing nothing.

I hope that this is of some help to you. Best wishes.

[Vee70 in reply to CDPO16]

Hi, thanks for your reply, yes i have a salbutomol inhaler which has had no effect. I also have the Ellipta Anoro which i take in the morning.

I have started my steroids, will ring my docs in the morning.

Feeling a little like back at square one.

Haven’t even been able to do anything with my son today so that doesn’t help 😢

[CDPO16 in reply to Vee70]

Sounds like you made the right decision to start the prednisolone and also that you have an efficient GP. I wasn't given a rescue pack for over 2 years after diagnosis.

I am sorry that you have had a poor day and I hope that you soon begin to feel better.

[Vee70 in reply to CDPO16]

Thankyou so much for taking time out of your day to message me.

I’m hoping it’s the right decision too.

Stay well x

[CDPO16 in reply to Vee70]

You are welcome x

[Capitan23 in reply to Vee70]

Have you tried Tringow 87/5/9

It works for me sometimes

My respiratory nurse gave it to me

[Vee70 in reply to Capitan23]

I haven’t heard of it, luckily feeling better today, so i’m glad i started taking my predisnolone.

Have a good day x

[knitter]

Take care, and if your breathing is not improving ring 111, especially if the Ventolin is having little effect.

[Vee70 in reply to knitter]

Thankyou i will 👍

[SquirrelsHolt]

Hi @Vee70 and I'm just wondering if you may have the

beginning's of a chest infection and maybe to ask you if you were given "rescue antibiotics" for times like these? Its a difficult one when you're just diagnosed, but generally for me,and I'm not a doctor or a nurse, if I'm breathless,I can also hear my chest making sounds but not necessarily coughing much sputum up. I then start my rescue AB's and still see the doctor on Monday.

Do let us know how you are getting along. Best wishes.

[Vee70 in reply to SquirrelsHolt]

Hello,

Yes i do have Clarithromycin but think i will see how i go. I am glad i took the steroids as i am breathing a little better.

I have a fair bit of sputum but generally more at night. If it changes colour, will defo take ab’s.

Will keep you posted

Thankyou so much for the advice xx