A cause for concern?

[Caitlyn6]

So I had immunosuppressant treatment in September 2018. In February I had a lung function test which showed dclo low at 69.5%. Had a CT scan which showed 'no pulmonary lung consolidation..no fibrosis..no bronchiectasis. Slightly increased translucency of the lung parenchyma perhaps related to chronic airway disease advise correlation with normal lung function'. Any ideas what this means? Consultant said repeat scan in 6 months. I am due round two of immunosuppressant treatment in September but don't know if I should have it now. Could I ask the lung consultant if the low dclo is related to the treatment? It is for MS so there are other treatments available though this is a good one. Thanks

[Caspiana]

Hello Caitlyn6 . 😊

I am on immunosuppressive drugs too. I have Rheumatoid Arthritis and Sjogrens that caused my lung disease. For me, the immunosuppressive drugs help to keep keep my autoimmune diseases in check and has been key (somewhat) in slowing down progression of my lung disease.

I think the only person who can advise you whether or not to continue treatment is your consultant who knows your past medical history and the effects the treatment may have on you.

I'm sorry to not be more helpful. Take care,

Cas xx 🙋🐕

[Caitlyn6 in reply to Caspiana]

But neither consultant knows me. Met ms dr twice and lung dr twice. Would lung dr know if my problem was caused by immunosuppressant. I have no history of lung conditions until this treatment

[Caspiana in reply to Caitlyn6]

I think the best people to discuss this with would be your doctors. Go armed with a list of questions , you must be comfortable and happy before your September treatment. xx 😊👋

[Caitlyn6 in reply to Caspiana]

I was going to ask my MS consultant to email the lung consultant to see if he would advise round two

[Caspiana in reply to Caitlyn6]

Probably worth it. xx